News

Keep up with the latest news from Young Epilepsy and stay informed about stories, campaigns, and changes that could impact you and your family.

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Book Launch: Izzy and Joe’s Camping Adventure

Young Epilepsy and Epilepsy Action have teamed-up to launch a beautifully illustrated storybook designed specifically for children aged 4 to 8 who are living with epilepsy. This book is the result of a unique collaboration shaped by the voices and experiences of children and families affected by epilepsy.

Photograph of teenager on a film set. The back drop is yellow and he is sat on a stool talking to the camera.

NEW campaign launch

This month sees us launching our new Understand My Epilepsy campaign. We are standing shoulder to shoulder with young people living with epilepsy across the UK and tackling the issue of inclusion.

Young Reps at Young Epilepsy

Young Epilepsy achieves Hear by Right flagship status

We are delighted to have been awarded the prestigious accolade of flagship status by the National Youth Agency (NYA) Hear by Right accreditation scheme. The award comes after our consistent commitment to put young people at the forefront of everything we do.

Ruben's story

My son's teacher accused him of daydreaming

A mum is raising awareness of the early signs of epilepsy after her five-year-old son Ruben was accused of 'daydreaming' in class - he now has around 15 absence seizures a day.

Katelinn and Lorna Real Life Story

Katelinn and Lorna: Their journey through Katelinn’s diagnosis

Receiving a diagnosis of epilepsy can be frightening and leave young people and their families feeling overwhelmed and isolated. By connecting with other families at our in-person meet-ups, Katelinn and Lorna were able to find mutual support and a safe space to share the challenges they face.