Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
Starting a New School Checklist
Starting a new school with epilepsy? Use our simple checklist to help you feel prepared, supported and confident before your first day.
My experience of epilepsy and brain fog
Living with epilepsy and brain fog can affect memory, confidence and daily life. Read Bryony's story of coping and support.
8 Things I wish schools understood about living with epilepsy
Paige shares what living with epilepsy at school is really like, urging schools to listen, understand behaviour, and support young people with respect.
Why No Family Should Feel Alone: Our Epilepsy Journey
A powerful family story of epilepsy, resilience and hope, showing the impact on school, home life and why no family should feel alone on this journey.
Benefits of journaling
Discover how journaling can help young people with epilepsy manage stress, reduce anxiety, improve wellbeing and recognise patterns in daily life.
The “what if I have a seizure?” loop
Stuck in “what if I have a seizure?” thoughts? Learn why seizure worries can spiral, how reassurance cycles work, and small ways to feel more in control.
I thought I was going to give up sport, but epilepsy didn’t win
Paralympic long jumper Molly shares her journey with epilepsy and cerebral palsy, from losing her licence to finding confidence, control and hope again.
What I wish I’d known before complex epilepsy assessment
What I wish I’d known before a complex epilepsy assessment – my experience of intracranial EEG, hospital stays and coping with uncertainty.
Low mood after seizures: what postictal feelings (recovery period) can look like
Why do you feel low after a seizure? Learn about postictal feelings, their impact on mental health, and practical ways to support your wellbeing.
It’s time for epilepsy to be understood
Epilepsy looks different for everyone. Nana-Ama shares her personal experience, from discovering Purple Day to why understanding really matters.