Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
Why I walked 100 miles before brain surgery
Read how Lev walked 100 miles for Young Epilepsy before brain surgery, raising over £10,000 and finding focus during a difficult time.
What nobody tells you about moving to adult epilepsy care
Moving from children’s to adult epilepsy care can feel confusing and overwhelming. Read real experiences, what the research shows, and what could make transition better for young people with epilepsy.
What I wish I'd known before starting university with epilepsy
Starting university with epilepsy? Julia reflects on independence, support, friendships and the lessons she wishes she'd known before moving away.
Starting a New School Checklist
Starting a new school with epilepsy? Use our simple checklist to help you feel prepared, supported and confident before your first day.
My experience of epilepsy and brain fog
Living with epilepsy and brain fog can affect memory, confidence and daily life. Read Bryony's story of coping and support.
8 Things I wish schools understood about living with epilepsy
Paige shares what living with epilepsy at school is really like, urging schools to listen, understand behaviour, and support young people with respect.
Frank’s seizures happen at night and so does the worry
Seven-year-old Frank lives with epilepsy and complex needs. His mum shares their struggle to be heard, long nights, and finding hope through support.
Why no family should feel alone: Our epilepsy journey
A powerful family story of epilepsy, resilience and hope, showing the impact on school, home life and why no family should feel alone on this journey.
Benefits of journaling
Discover how journaling can help young people with epilepsy manage stress, reduce anxiety, improve wellbeing and recognise patterns in daily life.
The “what if I have a seizure?” loop
Stuck in “what if I have a seizure?” thoughts? Learn why seizure worries can spiral, how reassurance cycles work, and small ways to feel more in control.