A group of young people at sunset smiling into the horizon

About Us

We are Young Epilepsy

Epilepsy can be one of the most frightening and isolating conditions a child can experience. There’s a loss of all sense of safety – not knowing when and where their next seizure will happen, who’ll be there and whether they’ll be hurt.

For 125 years, we’ve been transforming the lives of children and young people with epilepsy.

We’ve led the way in an inclusive, progressive and nurturing approach to the education and support of children and young people with epilepsy.

Today, more than ever, Young Epilepsy is dedicated to standing up with and for children and young people with epilepsy. We’re here for them. It’s our job to listen and work with them so they can fulfil their potential.

We campaign for children’s rights. We deliver health services and research that improves diagnosis and treatments. We support  children and young people throughout school, college, and university. We provide information, friendly advice, and practical help for living everyday life. 

To learn more about our work click here 

Our strategy & performance

Our five-year strategy is directly shaped by the experiences and priorities of the children and young people with epilepsy.

Our story

The history of Young Epilepsy, transforming the lives of children and young people with epilepsy for over 125 years.

Our people

Young Epilepsy is a team of young people, researchers, product developers, service providers, policy makers, campaigners, and fundraisers, plus an international network of partners.

Media centre

Get in touch with the team about speaking to people affected by epilepsy, as well as expert information about the condition, epilepsy research, living with the epilepsy, our campaigns and fundraising.