News and blogs

BBC The One Show young people with Edith Bowman

We're on The One Show

BBC's The One Show filmed three young people sharing their stories as part of the #UnderstandMyEpilepsy campaign.


Thank you Fliss

A special shout out to the incredible Fliss who completed the 26 miles in 26 days challenge as part of our Purple Day celebrations. Fliss was our top fundraiser for the challenge, raising £1,200. Read her story here.

Paediatric SUDEP and Seizure Safety Checklist

SUDEP Action & Young Epilepsy team up to create an epilepsy risk Checklist for children

SUDEP Action and Cornwall Partnership NHS Foundation Trust are collaborating with Young Epilepsy to create a paediatric version of the SUDEP and Seizure Safety Checklist. The award-winning Checklist, which launched in 2015, supports health professionals in discussing epilepsy mortality risks and SUDEP (Sudden Unexpected Death in Epilepsy) with their patients (aged 16+).

Photograph of school student look toward the front of the classroom concentrating

Children with epilepsy let down by schools

We found worrying disparities across the UK in school policies and support for young people living with epilepsy after over 1,000 families from across the country responded anonymously to our survey about the support they received at school during the 2021/22 academic year.   


Epilepsy medication - Valproate update

The medicines regulator (MHRA) has announced further changes to prescribing the epilepsy medication valproate which are due to be introduced over the coming months.

Zach's Law

Zach's Law

Young Epilepsy is one of several epilepsy charities that has been targeted on Twitter by individuals posting flashing images in an attempt to induce seizures. Epilepsy Society have led the ‘Zach’s Law’ campaign for greater protection online for people with epilepsy. The campaign was named after one of their young supporters who was targeted on social media.