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National Epilepsy Week

National Epilepsy Week: Let's Talk About Seizures

Many people don’t understand epilepsy. They don’t understand the different seizure types, seizure triggers, treatments, or possible medication side-effects. This means they do not know how to help or how to keep you included. We plan to change that!

This #NationalEpilepsyWeek, we want to help people understand there are different seizure types, and everyone’s epilepsy is unique to them. Join the conversation and share your experiences with us this week in the comments or on our stories #UnderstandMyEpilepsy

You can download our seizure first aid poster It shows the most important things you need to do to help someone having a seizure. 

 

We want to hear from you

Do you have a specific type of seizure? If you wanted to explain to a new friend what to look out for when you are having a seizure, how would you describe it?

Share your experiences with us

What is a Seizure?

An epileptic seizure is a sudden burst of abnormal electrical activity in the brain that can cause a range of symptoms. These can include involuntary muscle movements, changes in sensation, behaviour or awareness, falling down, loss of consciousness, and more.

Everyone’s Epilepsy is Unique

Everyone with epilepsy will have experienced seizures. There are many different types of seizures and syndromes, and how they look and feel can vary a lot. To understand a child or young person’s epilepsy, you need to understand their seizure type, their seizure triggers, their medication side-effects, and the impact on their mental health.

Types of seizures

What you might see: Their body suddenly goes stiff, and they can’t move. If they are standing, they will fall over.

Good to know: Tonic means an ‘increase in tone or tightness’ of the muscles. The muscles in their chest, arms, and legs tighten and become rigid. Their back arches but there’s no jerking.

Important links: Generalised onset seizures | How to help someone having a tonic seizure

What you might see: Their body may go stiff, and they will fall to the floor unconscious. For some people, their body shakes and jerks, for others, their body can go floppy or remain rigid.

Description: The tonic phase is when the person’s body goes stiff and they fall to the ground and unconscious. The clonic phase is when the person’s limbs begin to jerk rhythmically.

Important links: Generalised onset seizures | How to help someone having a tonic-clonic seizure

What you might see: Their muscles will suddenly go weak. It happens fast and lasts for a few seconds. It is as if they are a puppet and someone has cut their strings.

Description: Atonic is the opposite of tonic. In atonic seizures, all muscle tone is lost, causing the person to suddenly flop forward and fall to the ground.

Important links: Generalised onset seizures | How to help someone having an atonic seizure

What you may see: Some people suddenly stop what they are doing and stare into space. Other people can carry on walking and talking for a few seconds, and they might not even realise they're having a seizure.

Description: During an absence seizure, a young person can experience a range of symptoms, including loss of awareness, staring blankly, repetitive facial movements, for example: chewing or eye blinking.

Important links: Generalised onset seizures | How to help someone having an absence seizure

What you might see: Some people are aware during a focal onset seizure, but their responses may be slow. Other people are unaware of what is happening and won’t remember afterward. They may start to move their lips, because of a strange taste in their mouth. Sometimes they will start to fidget and chew for no reason. They may scream or even laugh. They may even kick or thrash around.

Good to know: Focal onset seizures start in one part of the brain. What happens during a focal onset seizure will depend on where in the brain it happens, and which functions that part of the brain controls. It could have motor symptoms (affects movement) and/or sensory symptoms (sensation affected).

Important links: Focal onset seizures | How to help someone having a focal seizure

What you might see: The muscles in their arms, legs, and body will suddenly jerk or twitch. The jerking can be quick and forceful, making people drop things or move in an unusual way.

Description: Myo’ means ‘muscle’ and ‘clonic’ means ‘jerk’. Myoclonic seizures usually affect both sides of the body at the same time. The muscles tighten rapidly, as if they have had a very brief shock-like contraction. They can lose consciousness but for such a short period of time, it’s hardly noticeable.

Important links: Generalised onset seizures | How to help someone having a myoclonic seizure

Collaboration with Epilepsy Charities and Organisations

This National Epilepsy Week, we are proud to join forces with other epilepsy charities and organisations. By working together, we can enhance our efforts and bring about meaningful change for those affected by epilepsy. Collaboration allows us to share resources, spread awareness more effectively, and support each other in our common goal of improving the lives of people with epilepsy.

National epilepsy week joint charities

Collaboration with Epilepsy Charities and Organisations

Get involved

Here are some other ways you can take part:

Share

Spread awareness and information about epilepsy and our campaign on social media using #NationalEpilepsyWeek

Educate

Take time to learn about epilepsy and educate others in your community.

Donate

Support our ongoing efforts by making a donation to Young Epilepsy.

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Support ground-breaking research at Young Epilepsy to help control seizures and improve the lives of young people with epilepsy. Your donations fund vital studies that aim to find better treatments and ultimately a cure. Join us in making a difference by contributing to our research initiatives and helping us advance our understanding of epilepsy.

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