News and blogs

Young People holding our petition box outside the 4 nations delivering the petition

Young people deliver our petition to government

Today young people are delivering our #UnderstandMyEpilepsy petition to education ministers in England, Scotland, Wales and Northern Ireland. The petition was signed by 16,163 people across the UK and is calling for children with epilepsy to be safe and included at school.

Different medicines: tablets, pills in blister pack, medications drugs, pills

New advice for males on valproate

Updated guidance on valproate use for males, including advice on contraception, family planning, and associated risks. Learn more about managing valproate safely.

New Mental Health Intervention Trial

New mental health intervention is being trialled in Southwest England specifically designed to support children and young people living with epilepsy.

Jasmine

I am Jasmine

Meet Jasmine, one of the heroes of our #UnderstandMyEpilepsy Campaign. Jasmine is 18 and experiences prolonged tonic clonic seizures. ForJasmine, this has meant that her teachers and students at school don't understand her epilepsy and the challenges that she faces.

Bottle of topiramate medication=

New topiramate safety measures and pregnancy

Topiramate, also known by the brand name Topamax, is an anti-seizure medication. Doctors should no longer prescribe topiramate to treat epilepsy during pregnancy unless there is no suitable alternative treatment. Girls and women whose periods have started will need to take steps to avoid pregnancy if they take topiramate.

School children in a classroom with their hands up

More than 16,000 of you joined us to make a stand

The overwhelming response to our recent petition calling for governments to ensure every child with epilepsy has a current Independent Healthcare Plan (IHP) in school has shown just how critical this issue is.