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Children with complex epilepsy still missing out on specialist care
New Epilepsy12 findings show fewer than half of children with complex epilepsy access specialist care within a year, despite little progress over six years.
News
Keep up with the latest news from Young Epilepsy and stay informed about stories, campaigns, and changes that could impact you and your family.
Featured
Young Epilepsy named Charity of the Year at The Empowerment Awards
Young Epilepsy is proud to have been named Charity of the Year at this year’s Empowerment Awards, held at London’s Emirates Stadium!
Children with epilepsy left waiting as government delays school support guidance
The government has delayed updates to guidance on supporting children and young people with medical conditions at school. More than a decade since the last review, concerns remain about access to the support needed to feel safe and included in education.
London Marathon 2027 charity places now open
Secure a London Marathon 2027 charity place with Young Epilepsy. Join #TeamPossible, receive expert support and help ensure no child faces epilepsy alone.
Young Epilepsy awarded grant to improve access to epilepsy diagnostics
Young Epilepsy is testing OPM-MEG to make epilepsy diagnosis more accessible for children with autism who find EEGs difficult.
New research finds higher rates of autism among children with epilepsy
A new study explores the link between epilepsy and autism in children, highlighting the need for early diagnosis, support and understanding for young people and families.
Genetic discovery brings answers for children with severe epilepsy
Manchester scientists have identified one of the most common genetic causes of severe childhood epilepsy, giving families long‑awaited diagnoses and opening the door to better understanding and future treatments.
New Research: Impact of epilepsy on parents and carers
New research shows epilepsy can have a serious impact on the mental health of both children and young people, and the parents and carers who support them.
Updated PACEPrime Research Study Materials Released
New PACEPrime research materials explain how epilepsy may affect physical activity in children aged 6–10, with clearer guidance for families to take part.
Purple Day - Nearly every hour...
The 23 Faces campaign highlights children and young people’s epilepsy stories, raising awareness, challenging stigma and helping stop the fear of seizures.