A young man is filmed on a blue background on a professional set.

Press Office

Young Epilepsy’s press office provides expert comment and information on epilepsy, with access to spokespeople and real-life stories from young people.

Get in touch

Young Epilepsy is the national charity dedicated to children and young people living with epilepsy.

We work with journalists across print, broadcast and digital media to support accurate, human reporting about the impact of epilepsy on children and young people. Our focus is on real life stories, supported by specialist insight into education, mental health, research and policy.

If you are working on a story and need comment, case studies, statistics or background information, our press team can help.

Media enquiries

Reach out to our team and make a difference for young people with epilepsy today.

Email: press@youngepilepsy.org.uk
Phone: 07572 420330

We aim to respond as quickly as possible during working hours.
If your enquiry is urgent, please include your deadline in the subject line.

Get in touch today
A young man sits before film cameras on a football pitch for a Christmas appeal.

What we can provide

Real‑life case studies

Children and young people are at the heart of what we do. Through their stories we aim to raise awareness. Real life stories can cover experiences of living with epilepsy, including diagnosis, school life, mental health, stigma, treatment and growing up.

Campaign and policy spokespeople

Expert comment on issues affecting children and young people with epilepsy, including:

  • education and school inclusion
  • mental health and wellbeing
  • youth voice and participation
  • national campaigns and children’s rights

Find out more about our campaigns and policy work

Research and health expertise

Access to informed spokespeople who can speak about:

  • childhood epilepsy research
  • diagnosis and treatment challenges
  • why outcomes and needs differ for children and young people
  • how research shapes real‑world support

Find out more about our research

Celebrity ambassadors

  • Our ambassadors help raise awareness at key moments through their own experiences of epilepsy
  • Where appropriate, they may be available to support media coverage alongside lived‑experience voices.
  • All ambassador enquiries should be coordinated via press@youngepilepsy.org.uk.

Interviews and features

Support for print, online, radio and broadcast interviews, including availability during awareness weeks and for longer‑form features.

Key awareness dates

Journalists planning coverage may wish to note:

During these periods, additional case studies, spokespeople and interview opportunities are often available.

Key facts about epilepsy in children and young people

  • Nearly every hour another child or young person in the UK is diagnosed with epilepsy
  • Epilepsy is the most common long-term condition in children
  • A third of children with epilepsy are living with uncontrolled seizures
  • 100,000+

    children and young people are currently living with epilepsy in the UK

  • 40+

    different types of epileptic seizures

  • 3 in 4

    young people with epilepsy say living with the condition has had a significant impact on their mental well-being

  • 1 in 3

    children with epilepsy are not adequately supported at school