Listening to and understanding the lived experiences of children and young people with epilepsy is at the core of how we work at Young Epilepsy. We are pushing the boundaries to ensure young people's voices are heard and respected.
The right for every child to have their opinions heard and taken seriously is fundamental to our work and led to the creation of the Youth Voice Network and Young Trustees. We work with a growing community of over 100 children and young people with epilepsy, aged 13 - 25 from across the UK.
Through sharing their stories, children and young people with epilepsy help shape our policies and campaigns, products and services, to create positive change in wider society.
Every young person with epilepsy has a unique story, we work to ensure their voice is heard.
There are also two Young Trustees who sit on Young Epilepsy’s trust board, ensuring that young people influence the direction and management of our organisation.
