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Hear Her Voice 2026
Hear Her Voice 2026 brought women and girls together to share lived experiences of epilepsy, amplifying voices through powerful stories, panels and connection.
News
Keep up with the latest news from Young Epilepsy and stay informed about stories, campaigns, and changes that could impact you and your family.
Featured
Young Epilepsy responds to new education guidance on medical conditions
Young Epilepsy responds to new DfE guidance on supporting children with medical conditions, highlighting the need for Individual Healthcare Plans in schools.
Genetic discovery brings answers for children with severe epilepsy
Manchester scientists have identified one of the most common genetic causes of severe childhood epilepsy, giving families long‑awaited diagnoses and opening the door to better understanding and future treatments.
New Research: Impact of epilepsy on parents and carers
New research shows epilepsy can have a serious impact on the mental health of both children and young people, and the parents and carers who support them.
Updated PACEPrime Research Study Materials Released
New PACEPrime research materials explain how epilepsy may affect physical activity in children aged 6–10, with clearer guidance for families to take part.
Purple Day - Nearly every hour...
The 23 Faces campaign highlights children and young people’s epilepsy stories, raising awareness, challenging stigma and helping stop the fear of seizures.
The Big Laugh 2026: A Night of Comedy for a Cause
The Big Laugh 2026 brought top comedians to The Comedy Store London for a night of laughter, raising vital funds for children and young people with epilepsy.
EastEnders is sparking conversations about epilepsy
EastEnders’ new storyline is helping more people understand what seizures really look like — and why awareness matters for young people with epilepsy. Learn how to spot seizure types and support someone safely.
Purple Sectors is back for 2025
Join Purple Sectors live on 11 Nov for charity racing in support of Young Epilepsy. 15 teams, big names, prizes & live commentary on YouTube!
Youth voices in Parliament
Young Epilepsy hosted a landmark event at the House of Commons, bringing together young people, families, MPs, and stakeholders to shine a spotlight on the urgent need for better support for children with epilepsy at school.