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Your voice matters: Send your message to government
Speak up for children with epilepsy. Send a message to the government to ensure better support in schools for children with epilepsy.
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Jay Bothroyd Joins Young Epilepsy as Ambassador
We are thrilled to announce that former professional footballer, Jay Bothroyd, has joined us as an official Young Epilepsy ambassador.
Peerage for Jane Ramsey
Jane Ramsey, Young Epilepsy Chair of Trustees, is to have a peerage conferred by His Majesty The King.
Bodhi's Triumph: A Year of Progress, Resilience, and Hope
From the heartache of 20 seizures a day to the triumph of taking those first steps. Bodhi's journey is a reminder that with support, anything is possible..
Living with epilepsy: Money-saving tips and hacks
Find out what savings you are eligible for on travel and activities if you are person living with epilepsy in the UK
New safety measures for valproate
New safety measures are now in place to reduce the risk of harms from the anti-seizure medicine valproate
Difficulty getting your meds?
The UK is experiencing shortages in certain medications, many of which are prescribed for epilepsy. If you are worried about your supply of anti-seizure medications or are having difficulty getting hold of certain prescribed medications speak to your epilepsy team for more advice. Do not stop taking your medication or reduce dosage. Always speak to your doctor before making any changes to your meds.
Changes to Advice for Males on Valproate
The Medicines and Healthcare products Regulatory Agency (MHRA) has recently updated their advice for all males taking valproate. Learn more about the new guidance.
Mental wellbeing and learning impact now included in NICE epilepsy quality standard
Young Epilepsy has welcomed a new quality standard for epilepsy care that say children and young people should be asked about their mental wellbeing and learning at their epilepsy appointments.
I am Bea
Meet Bea, one of the heroes of our #UnderstandMyEpilepsy Campaign. Bea is 15 and experiences focal seizures. For Bea this has meant that her teachers and students at school don't understand her epilepsy and the challenges that she faces.
Young Epilepsy Calls for Greater Understanding and Awareness of Epilepsy
Ahead of tonight’s BBC Panorama programme investigating UCKG, Young Epilepsy is calling for a greater understanding and awareness of epilepsy across society, including faith communities.
New valproate measures to begin in January 2024
The medicines regulator has asked healthcare organisations to plan for new measures related to the anti-seizure medication valproate. These changes will start to be rolled out from January 2024.