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Young Epilepsy named Charity of the Year at The Empowerment Awards
Young Epilepsy is proud to have been named Charity of the Year at this year’s Empowerment Awards, held at London’s Emirates Stadium!
News
Keep up with the latest news from Young Epilepsy and stay informed about stories, campaigns, and changes that could impact you and your family.
Featured
Young Epilepsy awarded grant to improve access to epilepsy diagnostics
Young Epilepsy is testing OPM-MEG to make epilepsy diagnosis more accessible for children with autism who find EEGs difficult.
Katelinn and Lorna: Their journey through Katelinn’s diagnosis
Receiving a diagnosis of epilepsy can be frightening and leave young people and their families feeling overwhelmed and isolated. By connecting with other families at our in-person meet-ups, Katelinn and Lorna were able to find mutual support and a safe space to share the challenges they face.
Young Epilepsy Launches Shout Text Support for Young People
We have launched a text service specifically aimed at young people living with epilepsy that are in distress. With a simple text message quoting the word ‘PURPLE’, users across the UK can access help and support from Shout’s trained volunteers at any time.
Young Epilepsy announced as official CarFest charity partner 2023
Young Epilepsy is an official charity partner of the country’s largest family fundraising festival – CarFest!
Young Epilepsy joins forces with Geek Retreat
We’re teaming up with Geek Retreat to create an inclusive gaming space for young people with epilepsy.
Thank you Fliss
A special shout out to the incredible Fliss who completed the 26 miles in 26 days challenge as part of our Purple Day celebrations. Fliss was our top fundraiser for the challenge, raising £1,200. Read her story here.
SUDEP Action and Young Epilepsy Launch Epilepsy Risk Checklist
SUDEP Action and Cornwall Partnership NHS Foundation Trust are collaborating with Young Epilepsy to create a paediatric version of the SUDEP and Seizure Safety Checklist. The award-winning Checklist, which launched in 2015, supports health professionals in discussing epilepsy mortality risks and SUDEP (Sudden Unexpected Death in Epilepsy) with their patients (aged 16+).
Public Statement from Coalition of Epilepsy Organisations
Young Epilepsy is joining with other organisations from the epilepsy community to call for a review of proposals that could have an impact on access to the anti-seizure medication valproate.
Many Women Unaware of Epilepsy Medication Risks in Pregnancy
Epilepsy Medications in Pregnancy Survey Report
Children with epilepsy let down by schools
We found worrying disparities across the UK in school policies and support for young people living with epilepsy after over 1,000 families from across the country responded anonymously to our survey about the support they received at school during the 2021/22 academic year.
Epilepsy medication - Valproate update
The medicines regulator (MHRA) has announced further changes to prescribing the epilepsy medication valproate which are due to be introduced over the coming months.