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Launch day: sign our petition!
Sign our petition today to ensure every child with epilepsy has an Individual Healthcare Plan in school.
News and blogs
Mental Health Intervention in Childhood Epilepsy (MICE)
Evidence for a new psychological treatment for children with epilepsy has been published in The Lancet.
Peerage for Jane Ramsey
Jane Ramsey, Young Epilepsy Chair of Trustees, is to have a peerage conferred by His Majesty The King.
New safety measures for valproate
New safety measures are now in place to reduce the risk of harms from the anti-seizure medicine valproate
Difficulty getting your meds?
The UK is experiencing shortages in certain medications, many of which are prescribed for epilepsy. If you are worried about your supply of anti-seizure medications or are having difficulty getting hold of certain prescribed medications speak to your epilepsy team for more advice. Do not stop taking your medication or reduce dosage. Always speak to your doctor before making any changes to your meds.
Changes to Advice for Males on Valproate
The Medicines and Healthcare products Regulatory Agency (MHRA) has recently updated their advice for all males taking valproate. Learn more about the new guidance.
Mental wellbeing and learning impact now included in NICE epilepsy quality standard
Young Epilepsy has welcomed a new quality standard for epilepsy care that say children and young people should be asked about their mental wellbeing and learning at their epilepsy appointments.
Young Epilepsy Calls for Greater Understanding and Awareness of Epilepsy
Ahead of tonight’s BBC Panorama programme investigating UCKG, Young Epilepsy is calling for a greater understanding and awareness of epilepsy across society, including faith communities.
New valproate measures to begin in January 2024
The medicines regulator has asked healthcare organisations to plan for new measures related to the anti-seizure medication valproate. These changes will start to be rolled out from January 2024.
We're on The One Show
BBC's The One Show filmed three young people sharing their stories as part of the #UnderstandMyEpilepsy campaign.