To mark International Epilepsy Day and International Women's Week, we launched Hear Her Voice – our first-ever event dedicated to the experiences of women, girls and mothers navigating epilepsy.
Led by acclaimed broadcaster Edith Bowman, the event brought together thought leaders, philanthropists, doctors, and advocates. But most importantly, it centred the voices of those directly affected – young women and mothers sharing their real lives and experiences.
Panel One – Courageous Voices: Redefining Life with Epilepsy
Actor and advocate Ellie Henry spoke about her resolve to bring epilepsy awareness into her work and her Netflix contract. Hum Fleming, a fashion PR consultant, reflected on growing up with an “invisible condition” and how it shaped her. Maryam Hussain, still in secondary school and a member our Youth Voice Network, shared her fears about being treated differently simply because of her diagnosis.
Panel Two – Unstoppable Women: Mothers Who Lead the Way
For our panel of mums, the discussion was just as powerful. Dr Laura Cunnane opened up about the heartbreaking loss of her son, Jude, and how it transformed her advocacy and determination to fundraise for epilepsy research. Kelly Norford spoke of the daily fight to ensure her three children all living with epilepsy are treated fairly. While broadcaster and BBC F1 host, Jennie Gow, shed light on the uncertainty that comes with her daughter's recent diagnosis.
Finally we welcomed Consultant Neurologist, Dr Tejal Mitchell, to participate in a Q&A with Edith, shedding light on the unique challenges women and girls face when navigating epilepsy. Her insights reinforced the need for continued advocacy and better support systems.
Hear Her Voice was more than just a discussion – it was a milestone. A packed room at the beautiful Lavery Studio at Cromwell Place in London proved that these conversations are long overdue, and the overwhelming response showed just how much they matter. As we mark International Women’s Week, we take a moment to celebrate this achievement and continue listening to the voices that need to be heard.
