Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
What nobody tells you about moving to adult epilepsy care
Moving from children’s to adult epilepsy care can feel confusing and overwhelming. Read real experiences, what the research shows, and what could make transition better for young people with epilepsy.
Starting a New School Checklist
Starting a new school with epilepsy? Use our simple checklist to help you feel prepared, supported and confident before your first day.
My experience of epilepsy and brain fog
Living with epilepsy and brain fog can affect memory, confidence and daily life. Read Bryony's story of coping and support.
8 Things I wish schools understood about living with epilepsy
Paige shares what living with epilepsy at school is really like, urging schools to listen, understand behaviour, and support young people with respect.
Benefits of journaling
Discover how journaling can help young people with epilepsy manage stress, reduce anxiety, improve wellbeing and recognise patterns in daily life.
The “what if I have a seizure?” loop
Stuck in “what if I have a seizure?” thoughts? Learn why seizure worries can spiral, how reassurance cycles work, and small ways to feel more in control.
Low mood after seizures: what postictal feelings (recovery period) can look like
Why do you feel low after a seizure? Learn about postictal feelings, their impact on mental health, and practical ways to support your wellbeing.
It’s time for epilepsy to be understood
Epilepsy looks different for everyone. Nana-Ama shares her personal experience, from discovering Purple Day to why understanding really matters.
Talking to a professional: How to be honest without feeling judged
Speaking up about epilepsy can feel difficult. Read advice from young people on being honest with professionals without feeling judged.
School Trips and Epilepsy: What You Need to Know
Epilepsy should not stop you going on school trips. Read how planning, support and small changes help you take part safely.