Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
What I wish I’d known before complex epilepsy assessment
What I wish I’d known before a complex epilepsy assessment – my experience of intracranial EEG, hospital stays and coping with uncertainty.
Low mood after seizures: what postictal feelings (recovery period) can look like
Why do you feel low after a seizure? Learn about postictal feelings, their impact on mental health, and practical ways to support your wellbeing.
It’s time for epilepsy to be understood
Epilepsy looks different for everyone. Nana-Ama shares her personal experience, from discovering Purple Day to why understanding really matters.
I thought I’d have a family by now – but changing epilepsy medication changed everything
Read Lisa’s story about seizure control, sodium valproate and the difficult choices epilepsy can bring around independence and family plans.
Talking to a professional: How to be honest without feeling judged
Speaking up about epilepsy can feel difficult. Read advice from young people on being honest with professionals without feeling judged.
Learning to face epilepsy, not hide it
Jessica shares her journey from being diagnosed with epilepsy at 13 to finding confidence, independence and hope while training to become a children’s nurse.
Helping my class understand epilepsy
Freya, aged nine, shares how creating a class presentation about epilepsy helped her feel confident, supported at school, and brave enough to speak up.
School Trips and Epilepsy: What You Need to Know
Epilepsy should not stop you going on school trips. Read how planning, support and small changes help you take part safely.
My experience of exam stress (You’re not alone)
Exams can feel overwhelming - especially if you’re also managing epilepsy. Dylan shares his personal experience of stress, seizures and finding ways to cope.
I lost my son - now I fight for change
After losing her son, Julia campaigns for better epilepsy and mental health support for young people with complex needs. Read her story today.