Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
Breaking the silence: Shahleen’s fight against stigma
Shahleen’s epilepsy journey shows courage and resilience—breaking stigma, raising awareness, and inspiring young people to feel less alone
I’ve found purpose through my pain
Emma-Louise turned trauma from epilepsy, bullying and loss into hope—writing a book to support others and raise awareness through Jo’s story.
Why purple? The story behind the colour of epilepsy awareness
Find out why purple is used for epilepsy awareness, what Purple Day is, and how wearing purple helps people feel seen, supported and hopeful together.
I spotted the signs - and spoke up
Discover 12-year-old Lucy and her mum's journey with epilepsy, and how Lucy's experience helped her recognise the symptoms of a seizure in a classmate.
Protecting my dignity during seizures – What I want schools to know
Paige shares how dignity, understanding and quick, calm support during seizures helped her feel safe and included, and what every school needs to get right.
Owning Purple Day
Dian explains why Purple Day matters, sharing their experience of epilepsy at school and how speaking up builds awareness, kindness and confidence.
Growing up early
Jess shares how childhood epilepsy meant growing up too fast, facing anxiety, and finding confidence through support that helps young people feel safe and understood.
Epilepsy changed our lives, now I’m fighting back
When her daughter Neli was diagnosed with epilepsy, Alwen turned hope into action—raising £1,200 through Young Epilepsy’s Walk 100 Miles Challenge. Join her journey
Belonging at school when you have epilepsy
School should feel safe and inclusive. Discover how belonging helps young people with epilepsy thrive and what teachers and parents can do to support it.
Why I ran the Manchester Marathon for Young Epilepsy
Sam found strength through marathon training after her daughter’s epilepsy diagnosis, raising £3,000 and hope with Young Epilepsy’s support.