Together, we create what’s possible
Your generosity helps transform the lives of young people with epilepsy.
Through the generosity of trusts, foundations and individual major donors, Young Epilepsy delivers life-changing programmes, campaigns and research. Here, we share the impact of that support and the difference our shared purpose can make.
No one-size-fits-all; just meaningful, measurable change.
Over 100,000 children and young people in the UK live with epilepsy, with 23 new diagnoses daily. Despite this:
of children and young people with epilepsy say the condition has impacted their mental health.
children and young people with epilepsy have seizures that cannot be controlled with medication.
of children and young people with epilepsy have said epilepsy has significantly impacted their learning.
We're here to change these statistics—working hand-in-hand with families, professionals, and mission-driven partners like you to create possible futures.
Check out how your collaboration will help us support young people with epilepsy, uplift their voices, campaign for their rights, and provide vital research into the causes, diagnosis, and treatment of epilepsy.
With support from the National Lottery Reaching Communities Fund and Bernard Lewis Family Charitable Trust, Young Epilepsy’s personalised support to over 450 children, young people and families is growing. Through one-to-one sessions, group support and collaborations with schools and care teams, we help young people feel more informed, connected and confident.
In 2022, the majority of young people with epilepsy accessing our services were focussed in south-east England.
By 2023, there were 95 referrals which led to 46 one-to-one support cases from more regions of the UK.
By 2024, more than double young people with epilepsy were referred to Young Epilepsy, with 190 referrals. This led to 129 one-to-one support cases.
In the first six months of 2025, we received 148 new referrals and have provided one-to-one support for 96 children and young people with epilepsy.
"Since speaking to the youth worker, we as a family feel like we have a lot of support and now know where to turn. Our youth worker has been brilliant with our child."- a parent on the value of our Youth Support
With the generous support of our partners and major donors, Young Epilepsy is building a growing national movement of young people with epilepsy who are leading change. Through the Youth Voice Network and in-person Youth Voice Roadshows, young people are influencing policy, raising awareness and making their voices heard across the UK.
From June 2024 to June 2025, the number of Youth Voice Network members increased from 166 to 231.
With the support of the George E Neville Foundation, research partners and our donors, our health and research programmes are dedicated to improving diagnosis, treatment and long-term outcomes for children with epilepsy.
Young Epilepsy is piloting Acceptance and Commitment Therapy (ACT) groups to support the mental health of young people with epilepsy and their families. These online sessions have already shown strong engagement and positive feedback, and new parent-focused resources are now in development.
The Wolfson Foundation was a key partner in equipping our Diagnostic Suite with the world’s first OPM-MEG brain scanner, developed in collaboration with leading universities and designed specifically for children. Their grant funded the purchase of OPM-MEG sensors and IT equipment, leading to earlier interventions and better outcomes for families.
Young Epilepsy's annual reports and accounts detail the incredible growth of our services, research, influence and strategy year by year. Check out where your money goes, how it is used, and the impact it creates.
Our partnerships with trusts, foundations and philanthropists have helped us support inclusion for children and young people with epilepsy in education, healthcare, and society.
With the support of generous funders, Young Epilepsy launched the #UnderstandMyEpilepsy campaign to draw attention to the fact that 1 in 3 children with epilepsy are not getting the support they need at school. Led by young people, the campaign called for every child with epilepsy to have an Individual Healthcare Plan – gathering over 16,000 signatures that were presented to UK leaders.
With the support from organisations like The Millie Community, Ottolenghi, Veronica Beard and more, Hear Her Voice is Young Epilepsy’s award-winning fundraising event that centres the voices of women and girls impacted by epilepsy. Bringing together philanthropists, business leaders, young people and brand partners, the event raises vital funds for our work while amplifying stories that inspire change.
Our new seizure films amplify the voices of children and young people with epilepsy, expressing how they want people to help in their own words. They differentiate between the seizure types and provide young people with a tool to show others how they can be supported.
I wanted to be a part of this campaign because I want people to be aware of the struggles. I want them to get the help so that they can succeed in their educational journey. I don't want anyone to go through what I went through.Zunera, Youth Voice Network member featured in the #UnderstandMyEpilepsy campaign
of children and young people with epilepsy felt more positive after receiving Youth Support.
more children and young people with epilepsy are accessing our Youth Support services since 2024.
more young people with epilepsy have joined the Youth Voice Network since 2024, with increases in every part of the UK.
new projects have been created to support our 2025-2030 strategy, 10 of which are already underway.
If you are inspired by the work of Young Epilepsy and are eager to support children and young people living with epilepsy, there are many ways you can get involved.
Donations from philanthropists, trusts, and foundations are essential for our work. Help fund life-saving research, support young people in health and education, and make a real difference.
Young Epilepsy has collaborated with many charities, trusts, and foundations to make a real difference in the lives of young people with epilepsy. Whether you have expertise in health, education, wellbeing, or youth interests, we would love to hear from you.
Preparing young people for adulthood is an important part of our mission. Run skill sharing workshops with our Youth Voice Network, boosting confidence and career readiness.
Purple Day, Hear Her Voice, the Big Give, and National Epilepsy Week are all great opportunities for participation and collaboration, but we have events going on throughout the year.
I learnt a lot today and was moved to tears by the panellists' stories of courage, resilience and advocacy. Very special event.Becky Cowan-Bowler, Hear Her Voice attendee
