Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
What I wish I’d known before complex epilepsy assessment
What I wish I’d known before a complex epilepsy assessment – my experience of intracranial EEG, hospital stays and coping with uncertainty.
Low mood after seizures: what postictal feelings (recovery period) can look like
Why do you feel low after a seizure? Learn about postictal feelings, their impact on mental health, and practical ways to support your wellbeing.
I thought I’d have a family by now – but changing epilepsy medication changed everything
Read Lisa’s story about seizure control, sodium valproate and the difficult choices epilepsy can bring around independence and family plans.
Learning to face epilepsy, not hide it
Jessica shares her journey from being diagnosed with epilepsy at 13 to finding confidence, independence and hope while training to become a children’s nurse.
Helping my class understand epilepsy
Freya, aged nine, shares how creating a class presentation about epilepsy helped her feel confident, supported at school, and brave enough to speak up.
School Trips and Epilepsy: What You Need to Know
Epilepsy should not stop you going on school trips. Read how planning, support and small changes help you take part safely.
Travelling with epilepsy: What to know about travel insurance
Thinking about travelling with epilepsy? This guide explains travel insurance in clear, simple terms so you can feel prepared, protected and confident.
Finding Hope with Young Epilepsy: Jamie’s Journey to CarFest Ambassador
Discover how Young Epilepsy supported Jamie through severe seizures to becoming seizure‑free and a CarFest ambassador, raising awareness for children with epilepsy.
Epilepsy is part of my story – but it doesn’t define me
Adam’s journey with epilepsy shows resilience and hope—overcoming setbacks through creativity, nature, and support networks to inspire new beginnings.
Breaking the silence: Shahleen’s fight against stigma
Shahleen’s epilepsy journey shows courage and resilience—breaking stigma, raising awareness, and inspiring young people to feel less alone