Starting a new school can feel exciting, but it can also feel a bit scary. You might look forward to new friends, new subjects and becoming more independent. At the same time, if you have epilepsy, you may have some extra questions or worries about. What school will be like? Will people understand your condition?
The good news is that there are things you can do before your first day to help you feel prepared, supported and confident. This checklist can help you think about what is important and make sure the right support is in place.
Tell your new school about your epilepsy
It is important that your new school knows about your epilepsy before you start. Teachers and school staff should understand what your seizures look like, how they affect you, and what support you might need.
Everyone experiences epilepsy differently. Giving staff clear information can help staff make sure you feel safe and included at school.
Check your healthcare plan is up to date
Your Individual Healthcare Plan (IHP) is an important document. It should include:
- Information about your epilepsy
- The type of seizures you have
- Any medication you take
- What staff should do if you have a seizure at school.
Before the new term starts, check that your healthcare plan is accurate and up to date. Make sure your new school has a copy and that the relevant staff understand it.
Know who your trusted adults are
Starting a new school often means getting to know lots of new people. It can help to identify a few trusted adults you can go to if you need support.
This might be your form tutor, pastoral staff, a nurse, a teaching assistant or another teacher. Knowing who to speak to can make it easier to ask for help if you are worried, feeling unwell or struggling.
Think about your medication
If you take anti-seizure medication during the school day, make sure you know what the arrangements will be.
Find out where your medication will be stored, who can access it, and what you need to do if it is time for a dose. Having a plan in place can help you feel confident and reduce worries about managing epilepsy at school.
Know where to go if you don't feel well
Sometimes you may need a quiet place to rest, recover after a seizure or take a break if you're not feeling your best.
Ask your school where you can go if this happens and who you should contact. Knowing there is a safe space available can provide reassurance, especially during your first weeks.
Decide what you want other people to know
Some young people are happy to talk openly about their epilepsy. Others prefer to keep it private. There is no right or wrong choice.
Think about what information you would like classmates and friends to know, and what you would rather keep personal. You can also talk to school staff about how they can support your wishes. The most important thing is that decisions about sharing information include you.
Keep talking
Starting a new school is a big change, and it can take time to settle in. As the weeks go by, you may discover things that are working well and others that need adjusting.
Keep talking to your family, teachers and healthcare team about how things are going. If you need more support, it is okay to ask for it. The support you receive can change as your needs change.
Starting a new school is a big step, but you do not have to do it alone. With the right support and planning, you can feel more confident about the transition. Settle into your new environment, make new friends and enjoy everything your new school has to offer.
