Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
I lost my son - now I fight for change
After losing her son, Julia campaigns for better epilepsy and mental health support for young people with complex needs. Read her story today.
Epilepsy is part of my story – but it doesn’t define me
Adam’s journey with epilepsy shows resilience and hope—overcoming setbacks through creativity, nature, and support networks to inspire new beginnings.
Breaking the silence: Shahleen’s fight against stigma
Shahleen’s epilepsy journey shows courage and resilience—breaking stigma, raising awareness, and inspiring young people to feel less alone
Fiona & Elijah: Autism, Epilepsy, and Hope
Fiona shares life with Elijah, a non-verbal autistic child living with epilepsy—navigating seizures, medication struggles, and hope for better understanding.
I’ve found purpose through my pain
Emma-Louise turned trauma from epilepsy, bullying and loss into hope—writing a book to support others and raise awareness through Jo’s story.
Why purple? The story behind the colour of epilepsy awareness
Find out why purple is used for epilepsy awareness, what Purple Day is, and how wearing purple helps people feel seen, supported and hopeful together.
Workplace guide to celebrating Purple Day
Purple Day helps workplaces raise epilepsy awareness, support children and families, and start important conversations about inclusion and wellbeing.
Lights, Camera, Misconception
Hollywood often misrepresents seizures, fuelling myths about epilepsy. Discover what films get wrong and why accurate portrayal matters.
Protecting my dignity during seizures – What I want schools to know
Paige shares how dignity, understanding and quick, calm support during seizures helped her feel safe and included, and what every school needs to get right.
I want to be the advocate I never had
Having epilepsy since infancy, Emma is now seven years seizure-free and a dedicated advocate for young people who lack community.