Blogs and Stories

After losing her son, Julia campaigns for better epilepsy and mental health support for young people with complex needs. Read her story today.

• Story
• Diagnosis and treatment
• Health & Research
• Living with epilepsy
• Mental health and wellbeing
• Understand my epilepsy

Meet Roman, diagnosed with epilepsy at seven. Discover how his family found hope, strength and joy in football as he thrives one year on with epilepsy.

• Story
• Diagnosis and treatment
• Education & Play
• Living with epilepsy
• Social Life
• Your questions answered

Adam’s journey with epilepsy shows resilience and hope—overcoming setbacks through creativity, nature, and support networks to inspire new beginnings.

• Story
• Diagnosis and treatment
• Education & Play
• Health & Research
• Living with epilepsy
• Mental health and wellbeing
• Understand my epilepsy
• Work and Employability

Shahleen’s epilepsy journey shows courage and resilience—breaking stigma, raising awareness, and inspiring young people to feel less alone

• Story
• Diagnosis and treatment
• Health & Research
• Living with epilepsy
• Mental health and wellbeing
• Social Life
• Support
• Understand my epilepsy

Lilly is four and lives with complex epilepsy. Read her family’s story and see how your support helps children like Lily feel safer, supported and hopeful.

• Story
• Diagnosis and treatment
• Support

Fiona shares life with Elijah, a non-verbal autistic child living with epilepsy—navigating seizures, medication struggles, and hope for better understanding.

• Story
• Diagnosis and treatment
• Health & Research
• Living with epilepsy
• Support
• Understand my epilepsy

Discover 12-year-old Lucy and her mum's journey with epilepsy, and how Lucy's experience helped her recognise the symptoms of a seizure in a classmate.

• Story
• Diagnosis and treatment
• Mental health and wellbeing

Jess shares how childhood epilepsy meant growing up too fast, facing anxiety, and finding confidence through support that helps young people feel safe and understood.

• Blog
• Living with epilepsy
• Diagnosis and treatment
• Mental health and wellbeing

Young Epilepsy’s festive guide: practical tips to manage routine changes, medication, and wellbeing. Stay prepared and enjoy Christmas confidently!

• Blog
• Diagnosis and treatment
• Living with epilepsy
• Mental health and wellbeing
• Social Life
• Support

From 30 seizures a day to living life fully – discover Liberty’s remarkable epilepsy journey and the breakthroughs that changed everything.

• Story
• Diagnosis and treatment
• Health & Research
• Living with epilepsy
• Mental health and wellbeing
• Understand my epilepsy