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Paediatric Epilepsy Research and Impact Report 2025
Young Epilepsy leads world-class childhood epilepsy research, delivering early diagnosis, precision treatments and better support for children and families.
Policies & reports
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Annual Report and Accounts 2024-2025
See how Young Epilepsy supported more young people this year, growing services, influencing schools and improving care through youth voice, research and education.
Research & Impact Report 2023
Explore the latest findings and breakthroughs in epilepsy research. Our 2023 report highlights advancements and insights for a brighter future.
Young People With Epilepsy in Marginalised Communities: Insights
The aim of this project was to hear about the experiences of managing epilepsy care from children, young people, and families from groups which may be more likely to face marginalisation. Our focus was particularly on children and young people with epilepsy from Black and minority ethnic communities, those living in deprived areas, and those with a co-occurring neuro diverse condition and/or a learning disability.
Research Projects 2022
Explore the latest insights and discoveries in epilepsy research with our comprehensive Young Epilepsy Research Projects 2022 report. Discover how pioneering studies are shaping the future of epilepsy treatment and improving the lives of young individuals affected by this condition.
Annual Report 2021-2022
Our purpose at Young Epilepsy is to help create a society in which children and young people living with epilepsy can thrive and fulfil their potential, have their voices listened to and respected, and their ambitions realised.
Epilepsy Medications in Pregnancy Survey Results – February 2023
This survey looked to measure current levels of awareness around the risks of valproate, as well as the levels of awareness around the other epilepsy medicines.
Epilepsy support at school 2023
Epilepsy support at school survey 2023, summary of findings.
Valproate survey 2020
Between October 2019 and January 2020, Epilepsy Action worked with Epilepsy Society and Young Epilepsy to conduct another survey of women who have taken or who are taking valproate, since the introduction of the Pregnancy Prevention Programme (PPP)
Epilepsy support at school survey 2019
Young Epilepsy survey of young people with epilepsy and their parents and carers to find out whether schools are providing support that complies with Government standards.
Research Report 2022
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.
Research Report 2021
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.