A young girl stands in the door of an outdoor playhouse.

Every child deserves a childhood

Get your Gifts in Wills guide

By remembering Young Epilepsy in your Will, you can help create a future in which young people with epilepsy are heard, and get the support they need, when they need it, no matter what. 

It means that, together, we can give children and young people the very best start in life. 

At Young Epilepsy, we're working towards a future where all children and young people with epilepsy are able to live ambitious and fulfilled lives. Research, practical support, trusted information and inclusion in education are vital to achieving this goal.  

Thank you for considering this life-changing act of kindness. Any gift, large or small, makes a profound difference.

Get your free Gifts in Wills guide today for more information. In addition, Young Epilepsy has partnered with the National Free Wills Network to offer you the opportunity to have your Will written or updated for free by a solicitor in your local area. 

Find out more about free Wills

Where are you on your gift in Wills journey? 

Are you at the start of your journey and need some more information? Are you planning to leave a legacy gift to Young Epilepsy? Or have you already included Young Epilepsy in your Will?  

Please contact Simon Purkiss on spurkiss@youngepilepsy.org.uk or 07825 188921. He is on hand to answer any questions you have, provide you with more information or thank you personally for your gift.

Fill a childhood with freedom and joy when you create a Will 

Like you, Young Epilepsy believes that childhood is a fundamental right of all children.  

And your Will is the most powerful way you can turn your beliefs and values into a lasting legacy for generations to come. 

Epilepsy impacts more than 100,000 children and young people in the UK. Tragically, their lives can be marked by exclusion, fear and misunderstanding.  

But gifts in Wills to Young Epilepsy mean children with epilepsy can enjoy the childhood they deserve. 

Your legacy can help create childhoods full of joy, discovery and freedom. 

A mother holds her daughter outside, both smiling.

“I won’t let epilepsy destroy Ivy’s childhood”

Ivy was diagnosed with epilepsy when she was three. Her mother, Kim, says: “We spend each day in fear of a seizure. My husband and I watch Ivy around the clock; taking turns to sleep in her room, as her seizures are mostly nocturnal and come without warning.”

Ivy’s seizures are so severe that she has to be rushed to hospital. Giving her the childhood she deserves is a constant challenge, and she is already missing out. “We have to plan everything carefully. We can never be more than 30 minutes away from an A&E hospital in case she has a seizure.”

And as Ivy grows up, Kim says: “We won’t be able to watch her all the time. What happens when she is a teenager, wanting to go to sleepovers?”

Kim says Young Epilepsy has been a massive positive for the family. “They are an incredible support to us all, they deliver research and give young people with epilepsy a voice.” 

Help families like Ivy's

Things to consider when making a Will 

  • Ensuring you have an up-to-date, professionally written Will is possibly the most important document you will ever create. If you die without a Will, you are known as ‘intestate’, which means that the law decides who will inherit your estate. 
  • A Will puts you in control of your legacy. It is the most effective way to make sure that family, friends and causes dear to you are remembered when you are gone. 
  • Remembering Young Epilepsy in your Will can be surprisingly easy and low-cost. 
  • Whether you are updating an existing Will, or creating an entirely new one, you should first speak to either a solicitor or a Will writer, who will guide you through the process. 
  • With an existing Will, you can add Young Epilepsy by using what is known as a codicil. Your solicitor or Will writer will help you with this. 
  • Whether it is large or small, every gift to Young Epilepsy counts. You can help create a future in which young people with epilepsy are heard, and they get the support they need, when they need it, no matter what. 
  • Review your Will now and then to ensure it reflects your current circumstances.