Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
What nobody tells you about moving to adult epilepsy care
Moving from children’s to adult epilepsy care can feel confusing and overwhelming. Read real experiences, what the research shows, and what could make transition better for young people with epilepsy.
I thought I was going to give up sport, but epilepsy didn’t win
Paralympic long jumper Molly shares her journey with epilepsy and cerebral palsy, from losing her licence to finding confidence, control and hope again.
What I wish I’d known before complex epilepsy assessment
What I wish I’d known before a complex epilepsy assessment – my experience of intracranial EEG, hospital stays and coping with uncertainty.
I thought I’d have a family by now – but changing epilepsy medication changed everything
Read Lisa’s story about seizure control, sodium valproate and the difficult choices epilepsy can bring around independence and family plans.
It’s time for epilepsy to be understood
Epilepsy looks different for everyone. Nana-Ama shares her personal experience, from discovering Purple Day to why understanding really matters.
Helping my class understand epilepsy
Freya, aged nine, shares how creating a class presentation about epilepsy helped her feel confident, supported at school, and brave enough to speak up.
I lost my son - now I fight for change
After losing her son, Julia campaigns for better epilepsy and mental health support for young people with complex needs. Read her story today.
Epilepsy is part of my story – but it doesn’t define me
Adam’s journey with epilepsy shows resilience and hope—overcoming setbacks through creativity, nature, and support networks to inspire new beginnings.
Breaking the silence: Shahleen’s fight against stigma
Shahleen’s epilepsy journey shows courage and resilience—breaking stigma, raising awareness, and inspiring young people to feel less alone
Fiona & Elijah: Autism, Epilepsy, and Hope
Fiona shares life with Elijah, a non-verbal autistic child living with epilepsy—navigating seizures, medication struggles, and hope for better understanding.