Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
What nobody tells you about moving to adult epilepsy care
Moving from children’s to adult epilepsy care can feel confusing and overwhelming. Read real experiences, what the research shows, and what could make transition better for young people with epilepsy.
Frank’s seizures happen at night and so does the worry
Seven-year-old Frank lives with epilepsy and complex needs. His mum shares their struggle to be heard, long nights, and finding hope through support.
What I wish I’d known before complex epilepsy assessment
What I wish I’d known before a complex epilepsy assessment – my experience of intracranial EEG, hospital stays and coping with uncertainty.
I thought I’d have a family by now – but changing epilepsy medication changed everything
Read Lisa’s story about seizure control, sodium valproate and the difficult choices epilepsy can bring around independence and family plans.
Talking to a professional: How to be honest without feeling judged
Speaking up about epilepsy can feel difficult. Read advice from young people on being honest with professionals without feeling judged.
Learning to face epilepsy, not hide it
Jessica shares her journey from being diagnosed with epilepsy at 13 to finding confidence, independence and hope while training to become a children’s nurse.
I lost my son - now I fight for change
After losing her son, Julia campaigns for better epilepsy and mental health support for young people with complex needs. Read her story today.
Roman’s Bravery: Thriving with Epilepsy at Seven
Meet Roman, diagnosed with epilepsy at seven. Discover how his family found hope, strength and joy in football as he thrives one year on with epilepsy.
Epilepsy is part of my story – but it doesn’t define me
Adam’s journey with epilepsy shows resilience and hope—overcoming setbacks through creativity, nature, and support networks to inspire new beginnings.
Breaking the silence: Shahleen’s fight against stigma
Shahleen’s epilepsy journey shows courage and resilience—breaking stigma, raising awareness, and inspiring young people to feel less alone