Blogs and Stories

Shahleen’s epilepsy journey shows courage and resilience—breaking stigma, raising awareness, and inspiring young people to feel less alone

• Story
• Diagnosis and treatment
• Health & Research
• Living with epilepsy
• Mental health and wellbeing
• Social Life
• Support
• Understand my epilepsy

Lilly is four and lives with complex epilepsy. Read her family’s story and see how your support helps children like Lily feel safer, supported and hopeful.

• Story
• Diagnosis and treatment
• Support

Fiona shares life with Elijah, a non-verbal autistic child living with epilepsy—navigating seizures, medication struggles, and hope for better understanding.

• Story
• Diagnosis and treatment
• Health & Research
• Living with epilepsy
• Support
• Understand my epilepsy

Discover 12-year-old Lucy and her mum's journey with epilepsy, and how Lucy's experience helped her recognise the symptoms of a seizure in a classmate.

• Story
• Diagnosis and treatment
• Mental health and wellbeing

Jess shares how childhood epilepsy meant growing up too fast, facing anxiety, and finding confidence through support that helps young people feel safe and understood.

• Blog
• Living with epilepsy
• Diagnosis and treatment
• Mental health and wellbeing

Young Epilepsy’s festive guide: practical tips to manage routine changes, medication, and wellbeing. Stay prepared and enjoy Christmas confidently!

• Blog
• Diagnosis and treatment
• Living with epilepsy
• Mental health and wellbeing
• Social Life
• Support

From 30 seizures a day to living life fully – discover Liberty’s remarkable epilepsy journey and the breakthroughs that changed everything.

• Story
• Diagnosis and treatment
• Health & Research
• Living with epilepsy
• Mental health and wellbeing
• Understand my epilepsy

No child should face epilepsy alone. Help us reach families sooner with vital support and care. Give now—your donation will be matched!

• Blog
• Diagnosis and treatment
• Health & Research
• Support
• together we create possible

Epilepsy diagnosis can feel overwhelming. Learn what to expect and find support. Start your journey today!

• Blog
• Diagnosis and treatment
• Living with epilepsy
• Mental health and wellbeing
• Support
• Understand my epilepsy

Logging seizures helps spot patterns and improve treatment. Learn practical tips to make tracking easier and take control of your epilepsy today!

• Blog
• Diagnosis and treatment
• Health & Research
• Living with epilepsy
• Support
• Your questions answered