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Receiving a diagnosis of epilepsy can come as a shock, leaving families feeling frightened, lonely and overwhelmed. Children and young people need help and support understanding their new diagnosis and how it will impact their lives. Help provide the support children need when they need it most.
Featured
A parent shares a heartfelt and honest look at life after getting a tough diagnosis for a child. It talks about the initial shock and the journey to finding a new normal. It highlights the importance of building a supportive community, adjusting to new routines, and trusting medical professionals. Discover the emotional ups and downs of getting unsolicited advice and comparisons from others.
Your dedication is making a lasting difference to thousands of young lives across the UK. With your help, more children and young people who are living with epilepsy can get the support they need to thrive and fulfil their potential.
Read Bethany’s inspiring story of running the London Marathon while managing epilepsy, showing resilience and determination.
Explore a personal journey with ketogenic diet therapy for epilepsy, highlighting the challenges, adjustments, and positive impacts on health.
National charity, Young Epilepsy is set to revolutionise the diagnostic experience for children with the condition by introducing the world’s first clinical wearable MEG (Magnetoencephalography) brain scanning system to its Health and Research Centre in Surrey. Following an exciting collaboration with experienced MEG researchers, clinicians and engineers from around the world, the team have created a wearable optically pumped magnetometer magnetoencephalography (OPM-MEG) system. The charity has placed this innovative technology, which is integrated into a magnetically shielded room, at the centre of its new diagnostic suite.
If you have autism, you are more likely to have epilepsy than someone without autism. We know that worldwide approximately 8.4 million people have both conditions, and they face some of the starkest inequalities in the world.
Abbie and her mum talk about Abbie's seizure at an Olly Murrs concert, but how they won't let epilepsy stop them enjoying the music they love!
A Young Epilepsy research study has found that many children with epilepsy are not getting the support they need at school. More than half of the children reported that some of their teachers and friends did not know that they had epilepsy. Parents have highlighted that school staff should be informed about the impact of epilepsy on learning and behaviour, in order to provide holistic support.
Read Olivia's inspiring story of running the London Marathon while managing epilepsy, sharing her journey of strength and determination.
Olympic Athlete, Beth Dobbin, experienced a large seizure 13 years ago, which affected her movement, speech and memory and resulted with some time spent in hospital.
Children and young people with epilepsy need better access to mental health support services, with only 15% of Health Boards and Trusts currently able to integrate mental health provision within their epilepsy clinics, according to the latest Epilepsy12 report from the Royal College of Paediatrics and Child Health (RCPCH).
