Blogs and Stories

A young boy sits in a doctors office wearing an EEG.

Where your money went: The impact of the Christmas Appeal 2024

7th November 2025

Your Christmas donations in 2024 raised £60,000 to create vital resources so no child faces an epilepsy diagnosis alone. Thank you for making this possible.

A young woman looks into the sun on a beach.

Diagnosis, Doubt, and Determination: Lexi’s Story

5th November 2025

Lexi’s epilepsy journey: from missed signs to diagnosis, challenges at school, and family resilience. Learn how support can make a difference - read her story!

Charlie, an infant with epilepsy, plays with toys while wearing bandages from surgery.

Rare, but real: a mother’s story of Lennox-Gastaut Syndrome

30th September 2025

Rachel tells the story of how her son Charlie was diagnosed with Lennox-Gastaut Syndrome, and how her family is looking forward.

A teacher laughs alongside her students in a classroom.

Living with Absence Seizures at School

9th September 2025

Learn to recognise signs of absence seizures, support learning and well-being, and foster strong home-school partnerships for children with epilepsy here.

Moving from Primary to Secondary School with Epilepsy

4th September 2025

Read our practical guidance for supporting students with epilepsy as they move from primary to secondary school, with tips for families and teachers.

A young woman on her sixteenth birthday smiles while wearing a tiara and 'sweet sixteenth' sash.

I thought I couldn’t live with epilepsy – now I’m helping others

2nd September 2025

Stigma and seizures pushed Jess to a frighteningly dark place. Discover how speaking out, finding community, and embracing the stage helped her find the light.