Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
Real Stories, Real Change: Youth Voice in Action
Young people with epilepsy came together across the UK to connect, share stories, and shape the future of epilepsy care. Here's what went down.
What to expect after diagnosis
Epilepsy diagnosis can feel overwhelming. Learn what to expect and find support. Start your journey today!
Useful tips for logging seizures
Logging seizures helps spot patterns and improve treatment. Learn practical tips to make tracking easier and take control of your epilepsy today!
Where your money went: The impact of the Christmas Appeal 2024
Your Christmas donations in 2024 raised £60,000 to create vital resources so no child faces an epilepsy diagnosis alone. Thank you for making this possible.
Diagnosis, Doubt, and Determination: Lexi’s Story
Lexi’s epilepsy journey: from missed signs to diagnosis, challenges at school, and family resilience. Learn how support can make a difference - read her story!
I had epilepsy - now I’m raising two sons with it
Discover the story of Jo, Rafferty, and Fin, a mother and two sons who have had an epilepsy diagnosis, and be inspired by their journey this Christmas.
Rare, but real: a mother’s story of Lennox-Gastaut Syndrome
Rachel tells the story of how her son Charlie was diagnosed with Lennox-Gastaut Syndrome, and how her family is looking forward.
Living with Absence Seizures at School
Learn to recognise signs of absence seizures, support learning and well-being, and foster strong home-school partnerships for children with epilepsy here.
Moving from Primary to Secondary School with Epilepsy
Read our practical guidance for supporting students with epilepsy as they move from primary to secondary school, with tips for families and teachers.
I thought I couldn’t live with epilepsy – now I’m helping others
Stigma and seizures pushed Jess to a frighteningly dark place. Discover how speaking out, finding community, and embracing the stage helped her find the light.