Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
Voices in Purple: How Tate turned Purple Day into something bigger
A 9-year-old fundraiser shows how Purple Day, 26 Miles in 26 Days, and one school going purple can help children with epilepsy feel seen.
Why purple? The story behind the colour of epilepsy awareness
Find out why purple is used for epilepsy awareness, what Purple Day is, and how wearing purple helps people feel seen, supported and hopeful together.
Lights, Camera, Misconception
Hollywood often misrepresents seizures, fuelling myths about epilepsy. Discover what films get wrong and why accurate portrayal matters.
Protecting my dignity during seizures – What I want schools to know
Paige shares how dignity, understanding and quick, calm support during seizures helped her feel safe and included, and what every school needs to get right.
I want to be the advocate I never had
Having epilepsy since infancy, Emma is now seven years seizure-free and a dedicated advocate for young people who lack community.
Owning Purple Day
Dian explains why Purple Day matters, sharing their experience of epilepsy at school and how speaking up builds awareness, kindness and confidence.
Understanding your learning style when you have epilepsy
Learn how epilepsy can affect learning and how understanding your learning style helps. Sally’s story shows how knowing strengths builds confidence at school.
Growing up early
Jess shares how childhood epilepsy meant growing up too fast, facing anxiety, and finding confidence through support that helps young people feel safe and understood.
Epilepsy changed our lives, now I’m fighting back
When her daughter Neli was diagnosed with epilepsy, Alwen turned hope into action—raising £1,200 through Young Epilepsy’s Walk 100 Miles Challenge. Join her journey
Belonging at school when you have epilepsy
School should feel safe and inclusive. Discover how belonging helps young people with epilepsy thrive and what teachers and parents can do to support it.