Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
My experience of epilepsy and brain fog
Living with epilepsy and brain fog can affect memory, confidence and daily life. Read Bryony's story of coping and support.
Frank’s seizures happen at night and so does the worry
Seven-year-old Frank lives with epilepsy and complex needs. His mum shares their struggle to be heard, long nights, and finding hope through support.
Why no family should feel alone: Our epilepsy journey
A powerful family story of epilepsy, resilience and hope, showing the impact on school, home life and why no family should feel alone on this journey.
The “what if I have a seizure?” loop
Stuck in “what if I have a seizure?” thoughts? Learn why seizure worries can spiral, how reassurance cycles work, and small ways to feel more in control.
I thought I was going to give up sport, but epilepsy didn’t win
Paralympic long jumper Molly shares her journey with epilepsy and cerebral palsy, from losing her licence to finding confidence, control and hope again.
What I wish I’d known before complex epilepsy assessment
What I wish I’d known before a complex epilepsy assessment – my experience of intracranial EEG, hospital stays and coping with uncertainty.
Low mood after seizures: what postictal feelings (recovery period) can look like
Why do you feel low after a seizure? Learn about postictal feelings, their impact on mental health, and practical ways to support your wellbeing.
I thought I’d have a family by now – but changing epilepsy medication changed everything
Read Lisa’s story about seizure control, sodium valproate and the difficult choices epilepsy can bring around independence and family plans.
Learning to face epilepsy, not hide it
Jessica shares her journey from being diagnosed with epilepsy at 13 to finding confidence, independence and hope while training to become a children’s nurse.
Helping my class understand epilepsy
Freya, aged nine, shares how creating a class presentation about epilepsy helped her feel confident, supported at school, and brave enough to speak up.