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News

Children with epilepsy are missing out on vital support

Children and young people with epilepsy need better access to mental health support services, with only 15% of Health Boards and Trusts currently able to integrate mental health provision within their epilepsy clinics, according to the latest Epilepsy12 report from the Royal College of Paediatrics and Child Health (RCPCH) .

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Young people's views on epilepsy care

Today we’re publishing the results of our young people’s survey, all about their experience of epilepsy care and how this has changed as they’ve grown older.

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Children write to Prime Minister on siblings' access to cannabis-based seizure treatments

As nine-year-old Thomas Braun delivers a letter to the Prime Minister about his families’ challenges in accessing cannabis-based seizure treatments for his brother, Chief Executive of Young Epilepsy, Mark Devlin, comments:

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Epilepsy medication risks in pregnancy reviewed

A review of anti-seizure medication (ASM) use in pregnancy has been published, showing that some ASMs are safer to use than others.

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Jack's Story

Help make the night before Christmas magical for all children.

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Survey – Young people’s experiences of epilepsy care

We’re asking young people to tell us how their experience of epilepsy care has changed as they’ve gotten older. The survey will help us understand what information or support young people might like to receive, as well as how healthcare for young people with epilepsy can be improved.

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National epilepsy report features St Piers pupil - Jake's story

Young Epilepsy is really pleased that Jake, one of our students from St Piers School, is featured on the front cover of the recent Epilepsy12 report (published by the Royal College of Paediatrics and Child Health). The report charts children's first year of epilepsy care across the country, as well as the epilepsy services provided in different areas. Young Epilepsy works closely with RCPCH, as part of the Epilepsy12 project board.

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Children missing out on vital epilepsy care - new report finds

 A new report charting children’s first year of epilepsy care shows families facing delays and barriers to diagnosis and treatment.  

The latest Epilepsy12 report from the Royal College of Paediatrics and Child Health (RCPCH) highlights the experiences of children across England and Wales in 2018-19. 

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Increase in epilepsy seizures in young people during lockdown

More seizures, more stress and appointments being cancelled are among the challenges faced by young people with epilepsy during the pandemic, Young Epilepsy has found.

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Cyber EssentialsFundraising RegulatorYoung Epilepsy is the operating name of The National Centre for Young People with Epilepsy Charitable Trust.
Registered Charity number 311877 (England and Wales)

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