Children and young people with epilepsy need better access to mental health support services, with only 15% of Health Boards and Trusts currently able to integrate mental health provision within their epilepsy clinics, according to the latest Epilepsy12 report from the Royal College of Paediatrics and Child Health (RCPCH) .
Today we’re publishing the results of our young people’s survey, all about their experience of epilepsy care and how this has changed as they’ve grown older.
As nine-year-old Thomas Braun delivers a letter to the Prime Minister about his families’ challenges in accessing cannabis-based seizure treatments for his brother, Chief Executive of Young Epilepsy, Mark Devlin, comments:
A review of anti-seizure medication (ASM) use in pregnancy has been published, showing that some ASMs are safer to use than others.
We’re asking young people to tell us how their experience of epilepsy care has changed as they’ve gotten older. The survey will help us understand what information or support young people might like to receive, as well as how healthcare for young people with epilepsy can be improved.
Young Epilepsy is really pleased that Jake, one of our students from St Piers School, is featured on the front cover of the recent Epilepsy12 report (published by the Royal College of Paediatrics and Child Health). The report charts children's first year of epilepsy care across the country, as well as the epilepsy services provided in different areas. Young Epilepsy works closely with RCPCH, as part of the Epilepsy12 project board.
A new report charting children’s first year of epilepsy care shows families facing delays and barriers to diagnosis and treatment.
The latest Epilepsy12 report from the Royal College of Paediatrics and Child Health (RCPCH) highlights the experiences of children across England and Wales in 2018-19.
More seizures, more stress and appointments being cancelled are among the challenges faced by young people with epilepsy during the pandemic, Young Epilepsy has found.