Today we’re publishing the results of our young people’s survey, all about their experience of epilepsy care and how this has changed as they’ve grown older.
A review of anti-seizure medication (ASM) use in pregnancy has been published, showing that some ASMs are safer to use than others.
We’re asking young people to tell us how their experience of epilepsy care has changed as they’ve gotten older. The survey will help us understand what information or support young people might like to receive, as well as how healthcare for young people with epilepsy can be improved.
Young Epilepsy is really pleased that Jake, one of our students from St Piers School, is featured on the front cover of the recent Epilepsy12 report (published by the Royal College of Paediatrics and Child Health). The report charts children's first year of epilepsy care across the country, as well as the epilepsy services provided in different areas. Young Epilepsy works closely with RCPCH, as part of the Epilepsy12 project board.
A new report charting children’s first year of epilepsy care shows families facing delays and barriers to diagnosis and treatment.
The latest Epilepsy12 report from the Royal College of Paediatrics and Child Health (RCPCH) highlights the experiences of children across England and Wales in 2018-19.
More seizures, more stress and appointments being cancelled are among the challenges faced by young people with epilepsy during the pandemic, Young Epilepsy has found.
ONE TEAM, ONE DREAM!
Today, Young Epilepsy and Epilepsy Research UK are delighted to announce the launch of our first joint venture - a £300,000 Fellowship Award for research into childhood epilepsy.
Applications opened last week for the first-ever Epilepsy Research UK & Young Epilepsy Fellowship Award. This unique and potentially life-saving collaboration aims to improve epilepsy treatment for young people by addressing the causes, diagnosis and clinical management of childhood epilepsies.
One in ten (11%) women who are currently taking the epilepsy medicine valproate are unaware of the possible risk of birth defects if taken in pregnancy. Furthermore, one in five (18%) don’t know that, when taken in pregnancy, the medicine could also cause learning and developmental delays in children. These worrying figures come from a newly published survey by the charities Young Epilepsy, Epilepsy Action and Epilepsy Society.
Young Epilepsy is the operating name of The National Centre for Young People with Epilepsy Charitable Trust. | |
