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Receiving a diagnosis of epilepsy can come as a shock, leaving families feeling frightened, lonely and overwhelmed. Children and young people need help and support understanding their new diagnosis and how it will impact their lives. Help provide the support children need when they need it most.
Featured
A parent shares a heartfelt and honest look at life after getting a tough diagnosis for a child. It talks about the initial shock and the journey to finding a new normal. It highlights the importance of building a supportive community, adjusting to new routines, and trusting medical professionals. Discover the emotional ups and downs of getting unsolicited advice and comparisons from others.
Discover how your support is transforming the lives of young people with epilepsy, providing them with the care and opportunities they deserve.
Support Annie at the Setting Purple Sectors event, raising money for epilepsy awareness and Young Epilepsy. Join us and cycle for a cause!
Discover Chris McCarthy’s journey from kart racer to motorsport journalist, his battle with epilepsy, and his mission to support young people with epilepsy.
Many children living with epilepsy love the thrill of sports but people can often restrict them based on the perception they can’t take part. Here’s how schools can enable young people with epilepsy to participate just as fully as other students based on suggestions provided by our audience.
As we celebrate Pride Month, we're taking this opportunity to reflect on our journey towards creating a more inclusive and welcoming environment for everyone at Young Epilepsy. We believe that promoting a culture of diversity and inclusion within our organisation is essential. By doing so, we are better equipped to support our beneficiaries in a way that respects and celebrates their individuality.
Join us in commemorating Father's Day as we share the touching story of Mark and his son Cayden, highlighting their inspiring bond.
Schools support learning, but how can they help the 103,600 children and young people in the UK with epilepsy? We asked our audience for ways to help young people with epilepsy thrive in school. Here's what they shared with us.
Here at Young Epilepsy, we're always striving to enhance the lives of children and young people living with epilepsy. In 2022, we embarked on a national qualitative research project to gain deeper insights into how families manage epilepsy-related information. The findings were encouraging. Every family had their unique methods, but what they lacked was a centralised, secure platform to streamline their epilepsy health data.
