News

Keep up with the latest news from Young Epilepsy and stay informed about stories, campaigns, and changes that could impact you and your family.

The entrance of the Neville Centre at the Young Epilepsy health centre in Surrey is pictured in summer.

Young Epilepsy Welcomes New Chief Executive

Young Epilepsy welcomes Jane Beaven as new Chief Executive, marking a new chapter for the charity’s mission to support children and young people with epilepsy.

S

Book Launch: Izzy and Joe’s Camping Adventure

Young Epilepsy and Epilepsy Action have teamed-up to launch a beautifully illustrated storybook designed specifically for children aged 4 to 8 who are living with epilepsy. This book is the result of a unique collaboration shaped by the voices and experiences of children and families affected by epilepsy.

Zac surprised at Manchester United grounds

Zac's One Big Thank You

Fundraising superstar, Zac, is surprised by BBC's The One Show with an extra special One Big Thank You.

Young boy smiling confident using smartphone at park

Partners for Digital Health Innovation

Tiny Medical Apps and Young Epilepsy have partnered to revolutionise epilepsy care with innovative digital solutions. As part of the SBRI Healthcare Epilepsy Phase 2 project, this collaboration aims to empower young people with epilepsy, improve self-management, and enhance their quality of life. Supported by the Accelerated Access Collaborative (AAC) and the Health Innovation Network, this initiative marks a significant step towards implementing digital health innovations within the NHS.

young woman casually relaxing on laptop

Understand My Epilepsy Campaign

Over 16,000 people signed our #UnderstandMyEpilepsy petition to make sure children with epilepsy are safe and included at school.

epilepsy research - scientist examining medication in laboratory

Young Epilepsy Joins the AMRC

Young Epilepsy has joined the Association of Medical Research Charities (AMRC) as an Introductory Member, marking a significant step forward in our commitment to driving research and placing it at the heart of our organisation.

Young Epilepsy Chair of Trustees Markus Ruetimann

Welcome to our New Chair of Trustees

Young Epilepsy welcomes Markus Hardy Ruetimann as the new Chair of Trustees, bringing extensive experience to support children and young people with epilepsy.

Young People holding our petition box outside the 4 nations delivering the petition

Young people deliver our petition to government

Today young people are delivering our #UnderstandMyEpilepsy petition to education ministers in England, Scotland, Wales and Northern Ireland. The petition was signed by 16,163 people across the UK and is calling for children with epilepsy to be safe and included at school.