Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
Feeling in limbo during or after an epilepsy diagnosis?
No child should face epilepsy alone. Help us reach families sooner with vital support and care. Give now—your donation will be matched!
What to expect after diagnosis
Epilepsy diagnosis can feel overwhelming. Learn what to expect and find support. Start your journey today!
Useful tips for logging seizures
Logging seizures helps spot patterns and improve treatment. Learn practical tips to make tracking easier and take control of your epilepsy today!
5 top tips to help your child during testing for an epilepsy diagnosis
Get practical advice on supporting your child through epilepsy testing. Learn how to be honest, use age-appropriate language, incorporate play, research hospital resources, and plan a reward. Make the experience less stressful for both of you.
Diagnosis, Doubt, and Determination: Lexi’s Story
Lexi’s epilepsy journey: from missed signs to diagnosis, challenges at school, and family resilience. Learn how support can make a difference - read her story!
Don't be afraid - give your child a voice
Lisa thought she was losing her son Xavier when she witnessed his first seizure. Since then, her family has overcome challenges and is looking to the future.
'You Can Help' seizure films
Watch new seizure films from young people living with epilepsy, great for professionals to learn how to support epilepsy in clinics, classrooms and care.
The making of: You can help films
Find out how the new seizure films were made with young people at the heart - what they want you to understand about their seizure type and how you can help.
Absence seizures
Discover real experiences of absence seizures from young people and families. Learn what they feel like and how to support someone through them.
Myoclonic seizures
Discover real experiences of myoclonic seizures from young people and families. Learn what they feel like and how to support someone through them.