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Children with complex epilepsy still missing out on specialist care
New Epilepsy12 findings show fewer than half of children with complex epilepsy access specialist care within a year, despite little progress over six years.
News
Keep up with the latest news from Young Epilepsy and stay informed about stories, campaigns, and changes that could impact you and your family.
New research finds higher rates of autism among children with epilepsy
A new study explores the link between epilepsy and autism in children, highlighting the need for early diagnosis, support and understanding for young people and families.
Updated PACEPrime Research Study Materials Released
New PACEPrime research materials explain how epilepsy may affect physical activity in children aged 6–10, with clearer guidance for families to take part.
Epilepsy12 Report
Discover the latest findings from the Royal College of Paediatrics and Child Health on improvements to care and support for young people with epilepsy.
Partners for Digital Health Innovation
Tiny Medical Apps and Young Epilepsy have partnered to revolutionise epilepsy care with innovative digital solutions. As part of the SBRI Healthcare Epilepsy Phase 2 project, this collaboration aims to empower young people with epilepsy, improve self-management, and enhance their quality of life. Supported by the Accelerated Access Collaborative (AAC) and the Health Innovation Network, this initiative marks a significant step towards implementing digital health innovations within the NHS.
New report shows uneven advances in children’s epilepsy care
The latest figures from the Royal College of Paediatrics and Child Health (RCPCH) show that some areas of epilepsy care for children are improving, but access to services still varies greatly.
New topiramate safety measures and pregnancy
Topiramate, also known by the brand name Topamax, is an anti-seizure medication. Doctors should no longer prescribe topiramate to treat epilepsy during pregnancy unless there is no suitable alternative treatment. Girls and women whose periods have started will need to take steps to avoid pregnancy if they take topiramate.
The Power of Research – Joint Research Reception
The Power of Research – Joint Research Reception
Mental Health Intervention in Childhood Epilepsy (MICE)
Evidence for a new psychological treatment for children with epilepsy has been published in The Lancet.
NICE Epilepsy Standard Adds Mental Wellbeing and Learning Impact
Young Epilepsy has welcomed a new quality standard for epilepsy care that say children and young people should be asked about their mental wellbeing and learning at their epilepsy appointments.