We’ve updated the information and recruitment materials for the PACEPrime study, our collaborative research project with Loughborough University. The study explores physical activity in childhood epilepsy, aiming to understand whether having epilepsy affects the amount of exercise children aged 6–10 do - and, if so, why.
This update includes refreshed participant information, simplified referral routes, and new visual assets to help families and professionals understand the study at a glance.
What is PACEPrime?
PACEPrime (Physical Activity in Childhood Epilepsy – Prime) is a research study designed to compare the activity levels of children with epilepsy and children without epilepsy. Researchers from Young Epilepsy and Loughborough University are working together to build a clearer picture of the barriers and opportunities children face when it comes to moving, playing, and staying active.
Updated self-referral information
We’ve published refreshed materials for two participant groups:
- Children with epilepsy (ages 6–10) - new self-referral patient information explains the study in child-friendly language and outlines how parents/carers can sign up.
- Children without epilepsy (ages 6–10) - updated control group materials help families understand why their involvement is essential for making the research fair and accurate.
Both documents now include clearer eligibility criteria and straightforward next steps for families who want to take part.
Who can take part?
Children with epilepsy:
- Aged 6–10
- Have a diagnosis of epilepsy
- Do not have any other physical or movement difficulty that would usually restrict exercise
Children without epilepsy:
- Aged 6–10
- Do not have epilepsy
- Do not have any physical or movement difficulty that usually restricts exercise
Parents or guardians must complete the sign-up process for all children under 16.
Why this research matters
Understanding how epilepsy impacts day-to-day physical activity will help improve support, guidance, and opportunities for children living with the condition. Children without epilepsy also play a vital role - their involvement helps researchers make fair comparisons and strengthen findings.
Want to get involved?
Families can use this link to explore the study further or register their interest.
If you have questions about the study or want to know more before signing up, please contact the Young Epilepsy research team at research@youngepilepsy.org.uk.
