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Transition to adult healthcare

Transitioning from paediatric to adult healthcare can be a big step.  This section of The Channel provides practical advice and resources to help prepare you for this change.

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As you get older, and begin the process of moving from paediatric care to adults’ services, there are changes that happen with your epilepsy care. Your epilepsy team may change, you may visit a different hospital, and there may be some changes to the way your epilepsy is managed.

For most people, transitioning to adult care happens between the ages of 16 -18. 

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Growing up with epilepsy

Check out this Young Epilepsy awareness film, where young people discuss their experiences in their own words.

It suddenly changed to the doctor only speaking to me and not my mum.
Young person living with epilepsy
Play video A young woman, Anoushka, looks into the camera for a selfie.

Anoushka interviews Roald Dahl Specialist Nurses about Transition

Anoushka from the Youth Voice Network meets Stacey, a Roald Dahl Epilepsy Nurse Specialist and Bethan, a Roald Dahl Specialist Transition Nurse to discuss what happens when you transition from Children's to Adult's care.

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Owen's Mum Lisa shares their experience of transition to adult care

Lisa shares the concerns she has in advance of the change, their experience of moving to adult care and some person recommendations for other parents whose children are approaching the age of transition.

Find out more

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Periods and epilepsy

Learn how epilepsy can affect periods and discover helpful tips for managing both, offering insights and support for young women.

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Contraception and epilepsy

Learn about the relationship between epilepsy and contraception, including important considerations for managing both safely and effectively.

The Channel

A space for young people, aged 13+, who are living with epilepsy, for them to share, learn and find support.

The Channel

Stepping into adulthood

From driving to transitions to adult healthcare, get tips from other young adults with epilepsy on navigating independence and life as you grow older.

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Out and about

Getting out can feel scary with epilepsy. Whether it’s a holiday, night out or simple journey, find advice from young people who understand.

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Living with epilepsy

Explore stories from young people with epilepsy, covering diagnosis, seizures and treatment, with tips to help you feel more confident.

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Get involved

Become part of the Channel! Get involved and make your voice heard with other young people with epilepsy. Find out how you can be a part of this community.