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Living with epilepsy

Learn from other young people’s experiences of epilepsy, from diagnosis to seizure management, and find support for your own journey.

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Living with epilepsy isn’t always easy. Whether you have just been diagnosed, are living with seizures, or are seizure free, epilepsy can present many challenges.  

Other young people with epilepsy understand this better than anyone. Many young people have told their stories about the difficulty of being diagnosed with epilepsy and the lack of support they received. Others have shared about their challenges with medication, seizures, and hospitals. 

Everyone’s epilepsy is different, but the tips and experiences of other young people can help you navigate your epilepsy journey with more confidence. 

Diagnosis stories

Read real life stories from your community about epilepsy diagnosis.

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Are you newly diagnosed with epilepsy?

Just diagnosed with epilepsy? Young Epilepsy is here to guide you with support, info, and hope for what’s ahead. Find trusted health information, support and community.

Check it out
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What to expect after diagnosis

Epilepsy diagnosis can feel overwhelming. This blog lets you know what expect and where find support. Start your epilepsy journey with information and confidence.

Find out more

Medication stories

From side-effects to success, discover the medication journeys other young people with epilepsy.

Medication stories

Learning to face epilepsy, not hide it

Jessica shares her journey from being diagnosed with epilepsy at 13 to finding confidence, independence and hope while training to become a children’s nurse.

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Find out more about epilepsy treatments

Discover the different treatments for epilepsy, from anti-seizure medication to the ketogenic diet, surgery to complementary therapies.

Learn more

Seizure stories

Everyone's seizures are different. Read stories from other young people who get it.

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Learn more about your seizures

Together with other young people living with epilepsy, we’ve created short films that help you explain your seizures and how you want to be supported. 

Watch them here
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Understanding seizures

In this Understand My Epilepsy episode, we explore the different types of seizures and how they affect young people. Host Kirsten McHale is joined by Alex and Olivia to break down the medical, emotional, and social aspects of epilepsy. 

Hospital and surgery stories

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Millie’s story: My brain surgery journey

Read Millie’s inspiring journey through brain surgery to treat epilepsy, sharing her challenges, hopes, and the impact on her life.

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What I wish I’d known before complex epilepsy assessment

What Spencer wishes he’d known before a complex epilepsy assessment – his experience of intracranial EEG, hospital stays and coping with uncertainty.

Read Spencer's story

Here's what you can find in The Channel

Here's what you can find in The Channel

Mental health and wellbeing

Get top tips and coping strategies and hear from other young people with epilepsy about how they are supporting their mental health wellbeing.

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Your education

Discover educational support and resources for students with epilepsy, helping you manage your condition and achieve your academic goals.

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Work and careers

Embark on your new career with confidence by checking out our guide to work and careers, covering your rights, support options, and personal stories.

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Stepping into adulthood

From driving to transitions to adult healthcare, get tips from other young adults with epilepsy on navigating independence and life as you grow older.

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Out and about

Getting out can feel scary with epilepsy. Whether it’s a holiday, night out or simple journey, find advice from young people who understand.

Here's what you can find in The Channel

Get involved

Become part of the Channel! Get involved and make your voice heard with other young people with epilepsy. Find out how you can be a part of this community.