Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
I thought I’d have a family by now – but changing epilepsy medication changed everything
Read Lisa’s story about seizure control, sodium valproate and the difficult choices epilepsy can bring around independence and family plans.
Learning to face epilepsy, not hide it
Jessica shares her journey from being diagnosed with epilepsy at 13 to finding confidence, independence and hope while training to become a children’s nurse.
Helping my class understand epilepsy
Freya, aged nine, shares how creating a class presentation about epilepsy helped her feel confident, supported at school, and brave enough to speak up.
I lost my son - now I fight for change
After losing her son, Julia campaigns for better epilepsy and mental health support for young people with complex needs. Read her story today.
Roman’s Bravery: Thriving with Epilepsy at Seven
Meet Roman, diagnosed with epilepsy at seven. Discover how his family found hope, strength and joy in football as he thrives one year on with epilepsy.
Finding Hope with Young Epilepsy: Jamie’s Journey to CarFest Ambassador
Discover how Young Epilepsy supported Jamie through severe seizures to becoming seizure‑free and a CarFest ambassador, raising awareness for children with epilepsy.
Epilepsy is part of my story – but it doesn’t define me
Adam’s journey with epilepsy shows resilience and hope—overcoming setbacks through creativity, nature, and support networks to inspire new beginnings.
Breaking the silence: Shahleen’s fight against stigma
Shahleen’s epilepsy journey shows courage and resilience—breaking stigma, raising awareness, and inspiring young people to feel less alone
Fear, Hope and Strength: Our Journey with Lilly’s Epilepsy
Lilly is four and lives with complex epilepsy. Read her family’s story and see how your support helps children like Lily feel safer, supported and hopeful.
Fiona & Elijah: Autism, Epilepsy, and Hope
Fiona shares life with Elijah, a non-verbal autistic child living with epilepsy—navigating seizures, medication struggles, and hope for better understanding.