Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
Frank’s seizures happen at night and so does the worry
Seven-year-old Frank lives with epilepsy and complex needs. His mum shares their struggle to be heard, long nights, and finding hope through support.
Why no family should feel alone: Our epilepsy journey
A powerful family story of epilepsy, resilience and hope, showing the impact on school, home life and why no family should feel alone on this journey.
I thought I was going to give up sport, but epilepsy didn’t win
Paralympic long jumper Molly shares her journey with epilepsy and cerebral palsy, from losing her licence to finding confidence, control and hope again.
What I wish I’d known before complex epilepsy assessment
What I wish I’d known before a complex epilepsy assessment – my experience of intracranial EEG, hospital stays and coping with uncertainty.
I thought I’d have a family by now – but changing epilepsy medication changed everything
Read Lisa’s story about seizure control, sodium valproate and the difficult choices epilepsy can bring around independence and family plans.
Learning to face epilepsy, not hide it
Jessica shares her journey from being diagnosed with epilepsy at 13 to finding confidence, independence and hope while training to become a children’s nurse.
Helping my class understand epilepsy
Freya, aged nine, shares how creating a class presentation about epilepsy helped her feel confident, supported at school, and brave enough to speak up.
I lost my son - now I fight for change
After losing her son, Julia campaigns for better epilepsy and mental health support for young people with complex needs. Read her story today.
Roman’s Bravery: Thriving with Epilepsy at Seven
Meet Roman, diagnosed with epilepsy at seven. Discover how his family found hope, strength and joy in football as he thrives one year on with epilepsy.
Finding Hope with Young Epilepsy: Jamie’s Journey to CarFest Ambassador
Discover how Young Epilepsy supported Jamie through severe seizures to becoming seizure‑free and a CarFest ambassador, raising awareness for children with epilepsy.