How to talk to schools about your child’s epilepsy
Our Board of Trustees is the governing body and is ultimately responsible for everything we do and how we do it.
Our purpose at Young Epilepsy is to help create a society in which children and young people living with epilepsy can thrive and fulfil their potential, have their voices listened to and respected, and their ambitions realised.
The aim of this project was to hear about the experiences of managing epilepsy care from children, young people, and families from groups which may be more likely to face marginalisation. Our focus was particularly on children and young people with epilepsy from Black and minority ethnic communities, those living in deprived areas, and those with a co-occurring neuro diverse condition and/or a learning disability.
Overwhelmed is an emotion that can cause physical strain during difficult times. It can make you feel like there’s not enough hours in the day, like you have too much to cope with.