My son's teacher accused him of daydreaming
A mum is raising awareness of the early signs of epilepsy after her five-year-old son Ruben was accused of 'daydreaming' in class - he now has around 15 absence seizures a day.
News
Katelinn and Lorna: Their journey through Katelinn’s diagnosis
Receiving a diagnosis of epilepsy can be frightening and leave young people and their families feeling overwhelmed and isolated. By connecting with other families at our in-person meet-ups, Katelinn and Lorna were able to find mutual support and a safe space to share the challenges they face.
Young Epilepsy launches Shout text service for young people in distress
We have launched a text service specifically aimed at young people living with epilepsy that are in distress. With a simple text message quoting the word ‘PURPLE’, users across the UK can access help and support from Shout’s trained volunteers at any time.
Young Epilepsy announced as official CarFest Charity Partner 2023
Young Epilepsy is an official charity partner of the country’s largest family fundraising festival – CarFest!
Young Epilepsy joins forces with Geek Retreat
We’re teaming up with Geek Retreat to create an inclusive gaming space for young people with epilepsy.
Thank you Fliss
A special shout out to the incredible Fliss who completed the 26 miles in 26 days challenge as part of our Purple Day celebrations. Fliss was our top fundraiser for the challenge, raising £1,200. Read her story here.
SUDEP Action & Young Epilepsy team up to create an epilepsy risk Checklist for children
SUDEP Action and Cornwall Partnership NHS Foundation Trust are collaborating with Young Epilepsy to create a paediatric version of the SUDEP and Seizure Safety Checklist. The award-winning Checklist, which launched in 2015, supports health professionals in discussing epilepsy mortality risks and SUDEP (Sudden Unexpected Death in Epilepsy) with their patients (aged 16+).
Public Statement from Coalition of Epilepsy Organisations
Young Epilepsy is joining with other organisations from the epilepsy community to call for a review of proposals that could have an impact on access to the anti-seizure medication valproate.
Too many women unaware of the risks linked to epilepsy medication in pregnancy
Epilepsy Medications in Pregnancy Survey Report
Children with epilepsy let down by schools
We found worrying disparities across the UK in school policies and support for young people living with epilepsy after over 1,000 families from across the country responded anonymously to our survey about the support they received at school during the 2021/22 academic year.