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Leadership Transition as CEO Mark Devlin Steps Down
After nearly seven years of transformative leadership, Mark Devlin will step down as Chief Executive of Young Epilepsy in October 2025.
News
Keep up with the latest news from Young Epilepsy and stay informed about stories, campaigns, and changes that could impact you and your family.
Featured
23 Faces
Nearly every hour a child or young person is diagnosed with epilepsy in the UK. That's 23 every single day.
New topiramate safety measures and pregnancy
Topiramate, also known by the brand name Topamax, is an anti-seizure medication. Doctors should no longer prescribe topiramate to treat epilepsy during pregnancy unless there is no suitable alternative treatment. Girls and women whose periods have started will need to take steps to avoid pregnancy if they take topiramate.
More than 16,000 of you joined us to make a stand
The overwhelming response to our recent petition calling for governments to ensure every child with epilepsy has a current Independent Healthcare Plan (IHP) in school has shown just how critical this issue is.
The Power of Research – Joint Research Reception
The Power of Research – Joint Research Reception
Launch day: sign our petition!
Sign our petition today to ensure every child with epilepsy has an Individual Healthcare Plan in school.
Mental Health Intervention in Childhood Epilepsy (MICE)
Evidence for a new psychological treatment for children with epilepsy has been published in The Lancet.
Peerage for Jane Ramsey
Jane Ramsey, Young Epilepsy Chair of Trustees, is to have a peerage conferred by His Majesty The King.
New safety measures for valproate
New safety measures are now in place to reduce the risk of harms from the anti-seizure medicine valproate
Difficulty getting your meds?
The UK is experiencing shortages in certain medications, many of which are prescribed for epilepsy. If you are worried about your supply of anti-seizure medications or are having difficulty getting hold of certain prescribed medications speak to your epilepsy team for more advice. Do not stop taking your medication or reduce dosage. Always speak to your doctor before making any changes to your meds.
Changes to Advice for Males on Valproate
The Medicines and Healthcare products Regulatory Agency (MHRA) has recently updated their advice for all males taking valproate. Learn more about the new guidance.
Mental wellbeing and learning impact now included in NICE epilepsy quality standard
Young Epilepsy has welcomed a new quality standard for epilepsy care that say children and young people should be asked about their mental wellbeing and learning at their epilepsy appointments.