Young Epilepsy and Epilepsy Action have teamed-up to launch Izzy and Joe’s Camping Adventure, a beautifully illustrated storybook designed specifically for children aged 4 to 8 who are living with epilepsy. This book is the result of a unique collaboration shaped by the voices and experiences of children and families affected by epilepsy.
A story that reflects real lives
This book was created to help children feel seen, understood and supported. It’s a gentle, engaging story that includes epilepsy as part of everyday life without making it the central theme. Whether read at bedtime, in the classroom, or independently, Izzy and Joe’s Camping Adventure offers comfort, confidence and connection.
It’s so nice to read stories that can relate to my child and her condition – finally.Parents who participated in co-creation
Built on insight, co-created with families
The standout insight from our development process was clear: children with epilepsy want stories that reflect their lives, but don’t define them by their condition. That’s why Izzy and Joe were created as relatable, adventurous characters who show that children with epilepsy can often enjoy the same activities as their friends.
It was nice to read a story that will talk about epilepsy and open up conversations with others.Parents who participated in co-creation
Help us shape the future
This book was made for children with epilepsy and now we want to hear from you. We’re inviting 100 families to read the book and share their feedback. Your insights will help us improve future resources and ensure every child feels represented.
Get your hands on our new storybook created for children aged 4-8 living with epilepsy in the UK.