Schools need to make sure that children with epilepsy have the support they need to be safe, included and achieve their potential.
Since 2014, all state schools in England have been legally required to have a policy on supporting children with medical conditions. This means that all children with epilepsy should have an individual healthcare plan (IHP) and school staff should be trained to meet their needs. Schools also need to take into account how a young person’s condition might affect their learning.
In 2017 we conducted a survey of young people with epilepsy, and their parents and carers, to find out whether they were getting support that met Government standards. The results, published in October 2017, showed that many young people were still receiving inadequate support.
We’re now relaunching our survey to see whether support for young people with epilepsy at school has changed. These results will help us provide up-to-date evidence to campaign for better support. Please take a few minutes to share your experiences (all responses will be anonymous):
We want all children with epilepsy to get the support they need at school.
We are asking families to contact their local MP to make sure schools in their area have the right support in place.
Young Epilepsy is calling for 4 things as part of our Rules 4 Schools campaign: