Listening to and understanding the lived experiences of children and young people with epilepsy is at the core of how we work at Young Epilepsy. We are pushing the boundaries to ensure young people's voices are heard and respected.
The right for every child to have their opinions heard and taken seriously is fundamental to our work with the Youth Voice Network and Young Trustees. We work with a growing community of over 100 children and young people with epilepsy, aged 13 - 25 from across the UK. Through sharing their stories, they help shape our policies and campaigns, products and services, to create positive change in wider society. Every young person with epilepsy has a unique story, we work to ensure their voice is heard.
There are also two Young Trustees who sit on Young Epilepsy’s trust board, ensuring that young people influence the direction and management of our organisation.
Why do we need you?
Young people are at the centre of everything we do, and we are striving to ensure that every young person with epilepsy has the opportunity to be heard and their condition better understood.
Different ways you can get involved:
How much you get involved is up to you! It is flexible - in person or online - and depending on how much time you can give.
- Join the community and build connections with other young people
- Be a part of the movement, and have your voice heard and help bring about social change
- Work on cocreation projects developing information, content, and campaigns
- Share your story to help other young people get the support they need
- Receive useful training
- Attend exciting events
- Boost your CV
We have a commitment to Article 12 of the UN Conventions of the Rights of a Child which states: