Young people in a group meeting

Be a member of the Youth Voice Network

Join us

A community of people who get it

The Youth Voice Network is a community of young people with epilepsy, for young people with epilepsy.

You have told us how important it is to meet and connect with other young people who get it. Other young people with epilepsy who you can share your experiences with, and they can share theirs. It is important to you to be with other young people who know what it is like to live with epilepsy. 

The Youth Voice Network is a group of over 180 young people with epilepsy between the ages of 13-25 from across to UK, who help to ensure that young people are at the centre of everything we do at Young Epilepsy. The Youth Voice Network helps shape the direction of the charity and ensure that we understand the experiences of young people and work to support them as well as campaigning for wider change.  

Youth Voice Network in London
Youth Voice Network members in London
young people in a group photo

Are you interested in joining the Youth Voice Network?

We want to hear from you! Skip to the bottom of the page to fill in the form and register your interest. 

We can't wait to meet you!

Ways you can get involved:

How much you get involved is up to you! It is flexible - in person or online - and depending on how much time you can give. You can: 

  • Share experiences and opinions to help make decisions, create positive change and help other young people get the support they need
  • Become part of a community and build connections with other young people
  • Get involved in cocreation projects, such as campaigns, developing information and content, and fundraising
  • Be a part of the movement, and have your voice heard and help bring about social change, influencing healthcare and education settings
  • Attend regular online meetings
  • Contribute to our online community platform

What we can offer you:

  • Access to exclusive online and in-person events
  • The chance to meet other young people living with epilepsy
  • Experiences to help boost your CV

You can be part of the change!

Your voice can make people sit up and listen. No one knows better than you how epilepsy can be frightening, isolating, and misunderstood.  Young Epilepsy is led by the voices of young people with epilepsy, young people like you.

We are campaigning for young people with epilepsy to:

  • Get the support they need in school to be safe and included
  • Get the mental health support they need as part of their epilepsy care

Exciting News: The Youth Voice Roadshow is coming to town! 

We are excited to announce the upcoming Youth Voice Roadshow, a series of in-person events designed to bring our community together. Events will provide invaluable opportunities for young people aged 13 - 25 years, to meet, share their stories, and explore ways to influence epilepsy care and support. 

Here are the dates and locations: 

  • Leeds: 15 March 2025 
  • Birmingham: 26 April 2025 
  • London: 14 June 2025 
  • Bristol: 26 July 2025 
  • Online Wrap Up Event: 28 August 2025 

Find out more about the Roadshow

I wanted to be a part of this campaign because I want people to be aware of the struggles. I want them to get the help, so that they can succeed in their educational journey. I don't want anyone to go through what I went through.
Zunera - Youth Voice Network member and features in the #UnderstandMyEpilepsy campaign

How do I sign up?

Fill in the form below and a member of the team will be in touch.

Once you are a member you will receive the Youth Voice Network handbook, with everything you need to know. You will have access to the Youth Voice Network platform where you can safely meet other young people and have conversations about epilepsy and all the different areas of life that might be affected by your condition.

You will receive the monthly Youth Voice Network E-newsletter, packed full of the latest news, events, and opportunities for you to get involved.