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The 2024 Research and Impact Report highlights the significant achievements and milestones of the National Centre for Young People with Epilepsy Charitable Trust. This year has been marked by substantial progress in paediatric epilepsy research, with numerous active projects, new studies, and impactful publications.
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This survey looked to measure current levels of awareness around the risks of valproate, as well as the levels of awareness around the other epilepsy medicines.
The purpose of the SEEN study was to document, on a population basis, the development and behaviour of young children with epilepsy. The study also focused on emotional wellbeing, sleep and fatigue in their parents. A comparison group of children with neurodisability were included; these children did not have epilepsy but had other neurological or neurodevelopmental problems. This comparison allowed us to study whether having a child with epilepsy, specifically, has an impact on parental functioning.
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.
This study arose from a senior politician saying to us “I know that people with epilepsy are not counted in schools and I know that they have a wide range of cognitive and behavioural problems but you have to do something that brings this to everyone’s attention”. Our response was to have four international annual meetings that highlight these problems, a new course for professionals and this; The CHESS Study.
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.
Young Epilepsy drives research into the full spectrum of childhood epilepsy, including its causes, treatments, and effects. We’re committed to ensuring the best outcomes for children and young people, and we recognise that research is the most powerful tool to make that happen.
We at Young Epilepsy invest in and coordinate research that explores every aspect of childhood epilepsy—from understanding its origins to improving care and support. Our mission is to secure the best possible future for those affected, and we know that evidence-based research is key.
At Young Epilepsy, we lead and fund vital research into childhood epilepsy—its causes, treatments, and the ways it affects young lives. Our goal is to improve outcomes for every child and family impacted by epilepsy, and we believe research is the strongest path to achieving that.
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.
