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Leadership Transition as CEO Mark Devlin Steps Down
After nearly seven years of transformative leadership, Mark Devlin will step down as Chief Executive of Young Epilepsy in October 2025.
News
Keep up with the latest news from Young Epilepsy and stay informed about stories, campaigns, and changes that could impact you and your family.
Featured
23 Faces
Nearly every hour a child or young person is diagnosed with epilepsy in the UK. That's 23 every single day.
Young Epilepsy Introduces OPM-MEG
National charity, Young Epilepsy is set to revolutionise the diagnostic experience for children with the condition by introducing the world’s first clinical wearable MEG (Magnetoencephalography) brain scanning system to its Health and Research Centre in Surrey. Following an exciting collaboration with experienced MEG researchers, clinicians and engineers from around the world, the team have created a wearable optically pumped magnetometer magnetoencephalography (OPM-MEG) system. The charity has placed this innovative technology, which is integrated into a magnetically shielded room, at the centre of its new diagnostic suite.
New research investigates the evidence on co-occurring autism and epilepsy
If you have autism, you are more likely to have epilepsy than someone without autism. We know that worldwide approximately 8.4 million people have both conditions, and they face some of the starkest inequalities in the world.
Young Epilepsy research shows lack of school support for children with epilepsy
A Young Epilepsy research study has found that many children with epilepsy are not getting the support they need at school. More than half of the children reported that some of their teachers and friends did not know that they had epilepsy. Parents have highlighted that school staff should be informed about the impact of epilepsy on learning and behaviour, in order to provide holistic support.
When Young Epilepsy met Olympian, Beth Dobbin
Olympic Athlete, Beth Dobbin, experienced a large seizure 13 years ago, which affected her movement, speech and memory and resulted with some time spent in hospital.
Children with epilepsy are missing out on vital support
Children and young people with epilepsy need better access to mental health support services, with only 15% of Health Boards and Trusts currently able to integrate mental health provision within their epilepsy clinics, according to the latest Epilepsy12 report from the Royal College of Paediatrics and Child Health (RCPCH).
Young people's views on epilepsy care
Today we’re publishing the results of our young people’s survey, all about their experience of epilepsy care and how this has changed as they’ve grown older.
Children write to Prime Minister on siblings' access to cannabis-based seizure treatments
Nine-year-old Thomas Braun delivers a letter to the Prime Minister about his families’ challenges in accessing cannabis-based seizure treatments for his brother.
Epilepsy medication risks in pregnancy reviewed
A review of anti-seizure medication (ASM) use in pregnancy has been published, showing that some ASMs are safer to use than others.
Jack's Story - Our 2020 Christmas Appeal
Help make the night before Christmas magical for all children.
Survey – Young people’s experiences of epilepsy care
We’re asking young people to tell us how their experience of epilepsy care has changed as they’ve gotten older. The survey will help us understand what information or support young people might like to receive, as well as how healthcare for young people with epilepsy can be improved.