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Guide to responding to DfE medical conditions consultation

Respond to the consultation

Together our voices are louder – The Department for Education needs to hear from people affected by epilepsy 

For the first time in a decade, the Department for Education has published updated and strengthened guidance for schools and other education settings on how they should support children and young people with medical conditions, including epilepsy. 

The Department for Education has launched a consultation to find out what people think of the new guidance. The responses will affect whether the guidance changes before it’s finalised. 

We need as many people as possible to make sure support in education is as strong as possible for children and young people with epilepsy. 

Respond to the consultation

Our #UnderstandMyEpilepsy campaign is calling for all children and young people with epilepsy to have an Individual Healthcare Plan (IHP) so they can be safe and included in education.   

The updated guidance has now made clear that any child with a health condition that needs supportive arrangements should have an IHP. The guidance also includes a section on specific health conditions, where it says that IHPs are essential for children and young people with epilepsy in education. 

Please show your support by responding to the consultation. This should only take about 10 minutes. We’ve provided a summary of the questions below, as well as Young Epilepsy’s views. 

**Please note – this consultation only relates to education settings in England. We are seeking to improve epilepsy support in education across the UK and will share any other relevant opportunities.** 

Guide to responding 

The consultation is online. You can respond to the questions and find out more here: 

Medical conditions at school: statutory guidance - Department for Education - Citizen Space 

Closing date: 1 May 2026

The questions are multiple choice, but you do have the option to make a comment for each question if you want to. Additional comments can help the Department for Education understand more about your response and personal experience. 

We’ve provided information below about Young Epilepsy’s views on the questions, but you can respond however you wish. 

Respond to the consultation

Consultation questions

Questions 1-9

  • This section asks you to fill in your details so the Department for Education knows who is making the response. 
  • You have the option to ask for your response to be confidential. 
  • Question 4 asks for your local authority – this will be the area where you live. 
  • You can leave the questions about organisations blank (questions 6-8) if you are responding as an individual.  

Question 10 

  • This asks if you agree with the principles that have influenced the guidance, including that children and young people with medical conditions should be included as fully as possible in education. 

Young Epilepsy’s view: We strongly agree. 

Question 11 

  • This asks if you agree with the proposals to support the mental health and wellbeing of children and young people with medical conditions. 

Young Epilepsy’s view: We strongly agree. 

Question 12 

  • This asks if you agree whether there should be a named governor or named senior leader who is responsible for the education setting’s medical conditions policy (which explains how children and young people will be supported). 

Young Epilepsy’s view: We strongly agree. 

Question 13 

  • This asks if you agree whether the education setting’s policy should be reviewed annually, as well as if there is a serious incident or ‘near miss’. 

Young Epilepsy’s view: We strongly agree. 

Question 14 

  • This asks if you agree with the list of topics that should be included in the education setting’s policy. 

Young Epilepsy’s view: We strongly agree. 

Question 15 

  • This asks if you agree that the medical conditions policy should cover support for conditions that have an impact on young people’s ability to participate fully in their education setting. This includes where a young person may still be waiting for a formal diagnosis. 

Young Epilepsy’s view: We strongly agree 

Question 16 

  • This asks if you agree that it is reasonable for all staff to have a role in supporting young people with medical conditions and for certain staff members to be trained to support young people with specific needs. 

Young Epilepsy’s view: We strongly agree 

Question 17 

  • This asks if you agree that young people with medical conditions should have an Individual Healthcare Plan (IHP) for their education setting if they need support in place, for example adjustments to learning or an emergency plan. 

Young Epilepsy’s view: We strongly agree.  

(Epilepsy affects everyone differently, so an IHP ensures each young person’s needs are understood and supported.) 

Question 18 

  • This asks if you agree that Individual Healthcare Plans (IHPs) should include the information set out in the guidance, including information about the condition, its impact on the young person, support needs and what to do in an emergency. 

Young Epilepsy’s view: We strongly agree. 

Question 19 

  • This asks if you agree with the approach to serious incidents and “near misses” related to medical conditions in education settings, including recording and reporting these instances to parents and young people, and learning lessons from them.  

Young Epilepsy’s view: We strongly agree. 

Questions 20-24 

  • These questions are about allergy rather than all medical conditions. If this is not relevant to your experience, you may wish to leave these questions blank. 

Young Epilepsy’s view: We do not have a view on questions 20-24. 

Question 25 

  • This asks if you agree that the additional information provided in this section of the guidance is helpful. It includes things like attendance, examinations, home to school transport, managing medicines and mental health. 

Young Epilepsy’s view: We strongly agree. 

Questions 26-28 

  • There is already a specific legal duty on state schools (including academies and pupil referral units) to make arrangements to support children with medical conditions. This question asks if a similar legal duty should be introduced for colleges, non-maintained special schools and independent schools. 

Young Epilepsy’s view: We strongly agree 

The last important step is to select ‘Submit Response’. 

Thank you for sharing your views! 

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