News

Keep up with the latest news from Young Epilepsy and stay informed about stories, campaigns, and changes that could impact you and your family.

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The entrance of the Neville Centre at the Young Epilepsy health centre in Surrey is pictured in summer.

Young Epilepsy Welcomes New Chief Executive

Young Epilepsy welcomes Jane Beaven as new Chief Executive, marking a new chapter for the charity’s mission to support children and young people with epilepsy.

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Book Launch: Izzy and Joe’s Camping Adventure

Young Epilepsy and Epilepsy Action have teamed-up to launch a beautifully illustrated storybook designed specifically for children aged 4 to 8 who are living with epilepsy. This book is the result of a unique collaboration shaped by the voices and experiences of children and families affected by epilepsy.

A school student looks toward the front of the classroom concentrating.

Children with epilepsy let down by schools

We found worrying disparities across the UK in school policies and support for young people living with epilepsy after over 1,000 families from across the country responded anonymously to our survey about the support they received at school during the 2021/22 academic year.   

Depakote

Epilepsy medication - Valproate update

The medicines regulator (MHRA) has announced further changes to prescribing the epilepsy medication valproate which are due to be introduced over the coming months.

Zach's Law

Zach's Law

Young Epilepsy is one of several epilepsy charities that has been targeted on Twitter by individuals posting flashing images in an attempt to induce seizures. Epilepsy Society have led the ‘Zach’s Law’ campaign for greater protection online for people with epilepsy. The campaign was named after one of their young supporters who was targeted on social media.

Your priorities for epilepsy research

As a member of the UK Epilepsy Priority Setting Partnership (PSP), Young Epilepsy is delighted to announce the Top Ten priorities for epilepsy research.

Young people call for mental health support in epilepsy care

Epilepsy is not a mental health condition, yet children and young people with epilepsy are four times more likely to develop mental health problems than their peers. Despite this increased risk, less than one in five children’s epilepsy clinics currently provide mental health screening and support.