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Young Epilepsy Welcomes New Chief Executive
Young Epilepsy welcomes Jane Beaven as new Chief Executive, marking a new chapter for the charity’s mission to support children and young people with epilepsy.
News
Keep up with the latest news from Young Epilepsy and stay informed about stories, campaigns, and changes that could impact you and your family.
Featured
Book Launch: Izzy and Joe’s Camping Adventure
Young Epilepsy and Epilepsy Action have teamed-up to launch a beautifully illustrated storybook designed specifically for children aged 4 to 8 who are living with epilepsy. This book is the result of a unique collaboration shaped by the voices and experiences of children and families affected by epilepsy.
Young Epilepsy achieves Hear by Right flagship status
We are delighted to have been awarded the prestigious accolade of flagship status by the National Youth Agency (NYA) Hear by Right accreditation scheme. The award comes after our consistent commitment to put young people at the forefront of everything we do.
Gene-STEPS Genome Study Boosts Care for Children With Epilepsy
Gene-STEPS: Global genomic collaboration improves lives and treatment for children with epilepsy
Epilepsy12 report on children’s epilepsy care
The latest figures from the Royal College of Paediatrics and Child Health (RCPCH) show that epilepsy care for children is improving, but access to services still varies greatly.
My son's teacher accused him of daydreaming
A mum is raising awareness of the early signs of epilepsy after her five-year-old son Ruben was accused of 'daydreaming' in class - he now has around 15 absence seizures a day.
Katelinn and Lorna: Their journey through Katelinn’s diagnosis
Receiving a diagnosis of epilepsy can be frightening and leave young people and their families feeling overwhelmed and isolated. By connecting with other families at our in-person meet-ups, Katelinn and Lorna were able to find mutual support and a safe space to share the challenges they face.
Young Epilepsy Launches Shout Text Support for Young People
We have launched a text service specifically aimed at young people living with epilepsy that are in distress. With a simple text message quoting the word ‘PURPLE’, users across the UK can access help and support from Shout’s trained volunteers at any time.
Young Epilepsy announced as official CarFest charity partner 2023
Young Epilepsy is an official charity partner of the country’s largest family fundraising festival – CarFest!
Young Epilepsy joins forces with Geek Retreat
We’re teaming up with Geek Retreat to create an inclusive gaming space for young people with epilepsy.
Thank you Fliss
A special shout out to the incredible Fliss who completed the 26 miles in 26 days challenge as part of our Purple Day celebrations. Fliss was our top fundraiser for the challenge, raising £1,200. Read her story here.
SUDEP Action and Young Epilepsy Launch Epilepsy Risk Checklist
SUDEP Action and Cornwall Partnership NHS Foundation Trust are collaborating with Young Epilepsy to create a paediatric version of the SUDEP and Seizure Safety Checklist. The award-winning Checklist, which launched in 2015, supports health professionals in discussing epilepsy mortality risks and SUDEP (Sudden Unexpected Death in Epilepsy) with their patients (aged 16+).