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Young Epilepsy Welcomes New Chief Executive
Young Epilepsy welcomes Jane Beaven as new Chief Executive, marking a new chapter for the charity’s mission to support children and young people with epilepsy.
News
Keep up with the latest news from Young Epilepsy and stay informed about stories, campaigns, and changes that could impact you and your family.
Featured
Book Launch: Izzy and Joe’s Camping Adventure
Young Epilepsy and Epilepsy Action have teamed-up to launch a beautifully illustrated storybook designed specifically for children aged 4 to 8 who are living with epilepsy. This book is the result of a unique collaboration shaped by the voices and experiences of children and families affected by epilepsy.
Difficulty getting your meds?
The UK is experiencing shortages in certain medications, many of which are prescribed for epilepsy. If you are worried about your supply of anti-seizure medications or are having difficulty getting hold of certain prescribed medications speak to your epilepsy team for more advice. Do not stop taking your medication or reduce dosage. Always speak to your doctor before making any changes to your meds.
Changes to Advice for Males on Valproate
The Medicines and Healthcare products Regulatory Agency (MHRA) has recently updated their advice for all males taking valproate. Learn more about the new guidance.
NICE Epilepsy Standard Adds Mental Wellbeing and Learning Impact
Young Epilepsy has welcomed a new quality standard for epilepsy care that say children and young people should be asked about their mental wellbeing and learning at their epilepsy appointments.
Young Epilepsy Urges Greater Understanding and Awareness
Ahead of tonight’s BBC Panorama programme investigating UCKG, Young Epilepsy is calling for a greater understanding and awareness of epilepsy across society, including faith communities.
New valproate measures to begin in January 2024
The medicines regulator has asked healthcare organisations to plan for new measures related to the anti-seizure medication valproate. These changes will start to be rolled out from January 2024.
We're on The One Show
BBC's The One Show filmed three young people sharing their stories as part of the #UnderstandMyEpilepsy campaign.
New Chief Executive for Epilepsy Research Institute UK
Rosemarie Pardington, Deputy CEO at Young Epilepsy will take over as CEO at Epilepsy Research Institute UK
Official launch: Epilepsy Research Institute UK
To mark the official launch of the Epilepsy Research Institute UK (ERI UK) Young Epilepsy CEO, Mark Devlin and Head of Health, Research and Compliance, Rosemarie Pardington, attended a reception at the famous address with George Freeman MP, Minister for Science, Research and Innovation.
Major step forward for children's epilepsy care in England
NHS England has launched a new ‘bundle of care’ for children’s epilepsy services setting out standards that all young people should expect.
NEW campaign launch
This month sees us launching our new Understand My Epilepsy campaign. We are standing shoulder to shoulder with young people living with epilepsy across the UK and tackling the issue of inclusion.